{"users":[{"id":2015,"username":"BloodCancerUK-SupportTeam","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/bloodcanceruk-supportteam/{size}/824_2.png","primary_group_name":"BloodCancerUK_NurseandSupportTeam","flair_name":"BloodCancerUK_NurseandSupportTeam","flair_group_id":41,"admin":true,"moderator":true,"trust_level":4},{"id":40,"username":"JoshuaBloodwise","avatar_template":"/letter_avatar_proxy/v4/letter/j/e79b87/{size}.png","trust_level":2},{"id":52,"username":"Pisces56","avatar_template":"/letter_avatar_proxy/v4/letter/p/ccd318/{size}.png","trust_level":2},{"id":395,"username":"Nichola75","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/nichola75/{size}/2256_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":2},{"id":3403,"username":"Duncan","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/duncan/{size}/1524_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":522,"username":"Alice_BloodCancerUK","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/alice_bloodcanceruk/{size}/779_2.png","admin":true,"moderator":true,"trust_level":4},{"id":2708,"username":"Andrew2","avatar_template":"/letter_avatar_proxy/v4/letter/a/58956e/{size}.png","trust_level":1},{"id":774,"username":"SuBloodcancerUK","avatar_template":"/letter_avatar_proxy/v4/letter/s/e9bcb4/{size}.png","trust_level":3},{"id":1986,"username":"Bannanacake","avatar_template":"/letter_avatar_proxy/v4/letter/b/f08c70/{size}.png","trust_level":2},{"id":35,"username":"Erica","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/erica/{size}/797_2.png","trust_level":3},{"id":1000,"username":"Willow","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/willow/{size}/2354_2.png","trust_level":3},{"id":7616,"username":"DuncanB","avatar_template":"/letter_avatar_proxy/v4/letter/d/9de053/{size}.png","trust_level":3},{"id":1092,"username":"Angie","avatar_template":"/letter_avatar_proxy/v4/letter/a/ec9cab/{size}.png","trust_level":2},{"id":473,"username":"AnnD","avatar_template":"/letter_avatar_proxy/v4/letter/a/47e85d/{size}.png","trust_level":2},{"id":7931,"username":"ProfessorJAK","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/professorjak/{size}/2358_2.png","trust_level":2},{"id":1267,"username":"2DB","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/2db/{size}/1031_2.png","trust_level":3},{"id":7494,"username":"Byrnebaby","avatar_template":"/letter_avatar_proxy/v4/letter/b/9fc348/{size}.png","trust_level":2},{"id":51,"username":"judesadventures","avatar_template":"/letter_avatar_proxy/v4/letter/j/ea666f/{size}.png","trust_level":2},{"id":8110,"username":"chloe.f","avatar_template":"/letter_avatar_proxy/v4/letter/c/58956e/{size}.png","trust_level":0},{"id":4444,"username":"Lucky","avatar_template":"/letter_avatar_proxy/v4/letter/l/e9c0ed/{size}.png","trust_level":2},{"id":7363,"username":"Ceri_BloodCancerUK","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/ceri_bloodcanceruk/{size}/2120_2.png","admin":true,"moderator":true,"trust_level":4},{"id":7389,"username":"Cati","avatar_template":"/letter_avatar_proxy/v4/letter/c/22d042/{size}.png","trust_level":1},{"id":3981,"username":"Jonpd","avatar_template":"/letter_avatar_proxy/v4/letter/j/db5fbb/{size}.png","trust_level":2},{"id":7480,"username":"alisonnoble","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/alisonnoble/{size}/2146_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":8048,"username":"Buckeye","avatar_template":"/letter_avatar_proxy/v4/letter/b/9f8e36/{size}.png","trust_level":1},{"id":6414,"username":"GenesisDevice","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/genesisdevice/{size}/1995_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":4090,"username":"Feetup","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/feetup/{size}/2310_2.png","trust_level":1},{"id":2704,"username":"Jules","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/jules/{size}/2216_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":2589,"username":"Teresa25","avatar_template":"/letter_avatar_proxy/v4/letter/t/47e85d/{size}.png","trust_level":1},{"id":5391,"username":"Leigh65","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/leigh65/{size}/1878_2.png","trust_level":2},{"id":7545,"username":"Spangleystar","avatar_template":"/letter_avatar_proxy/v4/letter/s/278dde/{size}.png","trust_level":2},{"id":7671,"username":"Sparklesummers","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/sparklesummers/{size}/2235_2.png","trust_level":1},{"id":2543,"username":"ChrissyD","avatar_template":"/letter_avatar_proxy/v4/letter/c/ed8c4c/{size}.png","trust_level":2},{"id":7551,"username":"meljarv","avatar_template":"/letter_avatar_proxy/v4/letter/m/bb73d2/{size}.png","trust_level":1},{"id":7473,"username":"Hughbie","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/hughbie/{size}/2286_2.png","trust_level":2},{"id":7777,"username":"Grahamp","avatar_template":"/letter_avatar_proxy/v4/letter/g/9de053/{size}.png","trust_level":1},{"id":7967,"username":"IanB","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/ianb/{size}/2287_2.png","trust_level":1},{"id":4342,"username":"Levante","avatar_template":"/letter_avatar_proxy/v4/letter/l/a9a28c/{size}.png","trust_level":1},{"id":3906,"username":"MaggieLT","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/maggielt/{size}/1519_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":8015,"username":"Denise-68","avatar_template":"/letter_avatar_proxy/v4/letter/d/cdc98d/{size}.png","trust_level":0},{"id":5736,"username":"Bonny16","avatar_template":"/letter_avatar_proxy/v4/letter/b/4bbf92/{size}.png","trust_level":2},{"id":4854,"username":"Emma_BloodCancerUK","avatar_template":"/letter_avatar_proxy/v4/letter/e/43a26b/{size}.png","primary_group_name":"BloodCancerUK_Nurses","flair_name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_group_id":43,"admin":true,"moderator":true,"trust_level":4},{"id":7889,"username":"Landys3","avatar_template":"/letter_avatar_proxy/v4/letter/l/8491ac/{size}.png","trust_level":1},{"id":4043,"username":"Parkiec","avatar_template":"/letter_avatar_proxy/v4/letter/p/b782af/{size}.png","trust_level":1},{"id":3843,"username":"LoisMum","avatar_template":"/letter_avatar_proxy/v4/letter/l/b782af/{size}.png","trust_level":1},{"id":2019,"username":"GemmaBloodCancerUK","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/gemmabloodcanceruk/{size}/884_2.png","primary_group_name":"BloodCancerUK_Nurses","flair_name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_group_id":43,"admin":true,"moderator":true,"trust_level":2},{"id":550,"username":"rogerh","avatar_template":"/letter_avatar_proxy/v4/letter/r/7ba0ec/{size}.png","trust_level":1},{"id":7538,"username":"Emma1111","avatar_template":"/letter_avatar_proxy/v4/letter/e/ed8c4c/{size}.png","trust_level":1},{"id":7915,"username":"d00d","avatar_template":"/letter_avatar_proxy/v4/letter/d/49beb7/{size}.png","trust_level":2},{"id":5198,"username":"Fiona_BloodCancerUK","avatar_template":"/letter_avatar_proxy/v4/letter/f/3ec8ea/{size}.png","primary_group_name":"BloodCancerUK_Nurses","flair_name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_group_id":43,"admin":true,"trust_level":2},{"id":1285,"username":"Rammie18","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/rammie18/{size}/817_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":2},{"id":7872,"username":"SCcoop","avatar_template":"/letter_avatar_proxy/v4/letter/s/c4cdca/{size}.png","trust_level":1},{"id":2595,"username":"Heidi_BloodCancerUK","avatar_template":"/letter_avatar_proxy/v4/letter/h/f19dbf/{size}.png","primary_group_name":"BloodCancerUK_Nurses","flair_name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_group_id":43,"admin":true,"moderator":true,"trust_level":3},{"id":7922,"username":"lorribo","avatar_template":"/letter_avatar_proxy/v4/letter/l/7ab992/{size}.png","trust_level":0}],"primary_groups":[{"id":41,"name":"BloodCancerUK_NurseandSupportTeam"},{"id":42,"name":"FSVs"},{"id":43,"name":"BloodCancerUK_Nurses"}],"flair_groups":[{"id":41,"name":"BloodCancerUK_NurseandSupportTeam","flair_url":null,"flair_bg_color":"","flair_color":""},{"id":42,"name":"FSVs","flair_url":"bolt","flair_bg_color":"","flair_color":""},{"id":43,"name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_bg_color":"","flair_color":""}],"topic_list":{"can_create_topic":false,"more_topics_url":"/c/general-chat/19?page=1","per_page":30,"top_tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"},{"id":71,"name":"anxiety","slug":"anxiety"},{"id":26,"name":"mgus","slug":"mgus"},{"id":24,"name":"mpn","slug":"mpn"},{"id":146,"name":"et","slug":"et"},{"id":233,"name":"covid-19","slug":"covid-19"},{"id":197,"name":"chronic-blood-cancer","slug":"chronic-blood-cancer"},{"id":62,"name":"research","slug":"research"},{"id":235,"name":"shielding","slug":"shielding"},{"id":145,"name":"essential-thrombocythaemia","slug":"essential-thrombocythaemia"},{"id":5,"name":"leukaemia","slug":"leukaemia"}],"topics":[{"fancy_title":"New here? Feel free to introduce yourself here :wave:","id":33,"title":"New here? Feel free to introduce yourself here :wave:","slug":"new-here-feel-free-to-introduce-yourself-here","posts_count":1177,"reply_count":922,"highest_post_number":1229,"image_url":null,"created_at":"2018-03-28T11:36:30.099Z","last_posted_at":"2026-05-13T18:14:29.514Z","bumped":true,"bumped_at":"2026-05-13T18:14:29.514Z","archetype":"regular","unseen":false,"pinned":true,"unpinned":null,"excerpt":"Hello! :wave: \nNew to the Blood Cancer UK Forum? Welcome! We are very happy you’re here! \nWhy not introduce yourself to the Blood Cancer UK Online Community, and tell us a little about you? \nOur support services are avai&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"unicode_title":"New here? Feel free to introduce yourself here 👋","tags":[],"tags_descriptions":{},"views":27918,"like_count":2663,"has_summary":true,"last_poster_username":"Duncan","category_id":19,"op_like_count":11,"pinned_globally":true,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":2015,"primary_group_id":41,"flair_group_id":41},{"extras":null,"description":"Frequent Poster","user_id":40,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":52,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"About the General chat category","id":1759,"title":"About the General chat category","slug":"about-the-general-chat-category","posts_count":4,"reply_count":2,"highest_post_number":6,"image_url":null,"created_at":"2019-08-09T10:53:21.604Z","last_posted_at":"2024-03-28T15:45:35.360Z","bumped":true,"bumped_at":"2024-03-23T16:28:45.472Z","archetype":"regular","unseen":false,"pinned":true,"unpinned":null,"excerpt":"A space for threads which don’t fall into other categories.","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":1294,"like_count":1,"has_summary":false,"last_poster_username":"Alice_BloodCancerUK","category_id":19,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":522,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2708,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"The Friday Forum Jukebox Club!","id":3640,"title":"The Friday Forum Jukebox Club!","slug":"the-friday-forum-jukebox-club","posts_count":3244,"reply_count":2126,"highest_post_number":3265,"image_url":null,"created_at":"2021-02-19T09:06:13.868Z","last_posted_at":"2026-05-16T12:44:42.125Z","bumped":true,"bumped_at":"2026-05-16T12:44:42.125Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi there forum family, \nHow are we all? \nFor all of you music fans within our forum community, we wanted to introduce to you ……The Friday Forum Jukebox Club! :musical_note: :partying_face: \nWhat is this we hear you ask? &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":196,"name":"music","slug":"music"}],"tags_descriptions":{},"views":27526,"like_count":7736,"has_summary":true,"last_poster_username":"DuncanB","category_id":19,"op_like_count":7,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":774,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1986,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"How do you get a peaceful nights sleep? Any tips?","id":2939,"title":"How do you get a peaceful nights sleep? Any tips?","slug":"how-do-you-get-a-peaceful-nights-sleep-any-tips","posts_count":95,"reply_count":66,"highest_post_number":98,"image_url":null,"created_at":"2020-08-04T17:05:13.653Z","last_posted_at":"2026-05-02T21:23:50.864Z","bumped":true,"bumped_at":"2026-05-02T21:23:50.864Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Good evening all. I’m just sitting here yawning away remembering the struggle I had to get to sleep last night, followed by the five times I awoke during the night, facing the same struggle to get back to sleep each time&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":71,"name":"anxiety","slug":"anxiety"},{"id":197,"name":"chronic-blood-cancer","slug":"chronic-blood-cancer"},{"id":264,"name":"sleep","slug":"sleep"}],"tags_descriptions":{},"views":4599,"like_count":186,"has_summary":true,"last_poster_username":"ProfessorJAK","category_id":19,"op_like_count":5,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":1092,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":522,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":473,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7931,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"No Place Like Home","id":16284,"title":"No Place Like Home","slug":"no-place-like-home","posts_count":16,"reply_count":11,"highest_post_number":16,"image_url":"https://forum.bloodcancer.org.uk/uploads/db4078/optimized/2X/8/8e535efe0062396fb43e550cb2a1232476c91e58_2_1024x461.jpeg","created_at":"2026-04-28T13:50:37.356Z","last_posted_at":"2026-04-29T08:29:37.808Z","bumped":true,"bumped_at":"2026-04-29T08:29:37.808Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Last week down at the Transplant Centre in Glasgow for 1 year Post Transplant Review. \nLovely walk around the West End of Glasgow. \nEnjoyable couple of days with my Nephew, his wife and my Great Niece and Nephew. \nOut wa&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":62,"like_count":31,"has_summary":false,"last_poster_username":"DuncanB","category_id":19,"op_like_count":5,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1267,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7494,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":51,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Is ET the same as myeloproliferative?","id":16202,"title":"Is ET the same as myeloproliferative?","slug":"is-et-the-same-as-myeloproliferative","posts_count":5,"reply_count":0,"highest_post_number":5,"image_url":null,"created_at":"2026-04-19T20:09:30.352Z","last_posted_at":"2026-04-23T20:57:12.441Z","bumped":true,"bumped_at":"2026-04-23T20:57:12.441Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi, \nMy nana has been diagnosed with Essential thrombocythemia (&#39;ET&#39;) around a year ago, her consultant has always mentioned Essential thrombocythemia (&#39;ET&#39;) but recently on a letter to her dr it mentions that she has my&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":61,"like_count":12,"has_summary":false,"last_poster_username":"Duncan","category_id":19,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8110,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":4444,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Air travel, low platelets","id":16232,"title":"Air travel, low platelets","slug":"air-travel-low-platelets","posts_count":4,"reply_count":1,"highest_post_number":4,"image_url":null,"created_at":"2026-04-22T07:20:40.352Z","last_posted_at":"2026-04-22T12:20:48.698Z","bumped":true,"bumped_at":"2026-04-22T12:20:48.698Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi I have Chronic myelomonocytic leukaemia (&#39;CMML&#39;) and whilst most of my bloods are reasonable my platelets are still going down now to 32. Does anybody have any experience or advice  about  air travel wthow platelets. &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":14,"name":"cmml","slug":"cmml"},{"id":100,"name":"travel","slug":"travel"}],"tags_descriptions":{},"views":51,"like_count":4,"has_summary":false,"last_poster_username":"Jonpd","category_id":19,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7389,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":3981,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Treatment","id":16203,"title":"Treatment","slug":"treatment","posts_count":5,"reply_count":1,"highest_post_number":5,"image_url":null,"created_at":"2026-04-19T20:17:34.292Z","last_posted_at":"2026-04-22T07:41:21.902Z","bumped":true,"bumped_at":"2026-04-22T07:41:21.902Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi, my nana has been diagnosed with Essential thrombocythemia (&#39;ET&#39;) around a year ago now, she has been taking Hydroxycarbamide which she is having a break from For 6 weeks due to some side effects. She has now been giv&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":78,"like_count":18,"has_summary":false,"last_poster_username":"Ceri_BloodCancerUK","category_id":19,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8110,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7480,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Which travel insurance companies cover CLL","id":16169,"title":"Which travel insurance companies cover CLL","slug":"which-travel-insurance-companies-cover-cll","posts_count":6,"reply_count":2,"highest_post_number":6,"image_url":null,"created_at":"2026-04-15T13:13:54.522Z","last_posted_at":"2026-04-21T21:50:25.291Z","bumped":true,"bumped_at":"2026-04-21T21:50:25.291Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"What travel insurance company have people used for travelling with Chronic lymphocytic leukaemia (&#39;CLL&#39;)","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":72,"like_count":7,"has_summary":false,"last_poster_username":"Jules","category_id":19,"op_like_count":0,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8048,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":4090,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":2704,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Essential thrombocytopenia","id":16184,"title":"Essential thrombocytopenia","slug":"essential-thrombocytopenia","posts_count":18,"reply_count":13,"highest_post_number":18,"image_url":null,"created_at":"2026-04-16T18:07:14.173Z","last_posted_at":"2026-04-17T16:06:41.542Z","bumped":true,"bumped_at":"2026-04-17T16:06:41.542Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi my name is Teresa I was diagnosed with Essential thrombocytopenia 4 years ago my platelets have stayed stable my spleen was at 14.4 cm I’ve just had second scan and my spleen is now 17 cm I’m meant to be flying on Sun&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":93,"like_count":40,"has_summary":false,"last_poster_username":"Teresa25","category_id":19,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":2589,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3981,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Change to routine&hellip; how to cope?","id":15933,"title":"Change to routine... how to cope?","slug":"change-to-routine-how-to-cope","posts_count":23,"reply_count":15,"highest_post_number":23,"image_url":null,"created_at":"2026-03-13T18:10:30.025Z","last_posted_at":"2026-04-08T19:06:33.291Z","bumped":true,"bumped_at":"2026-04-08T19:06:33.291Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hello all \nI used to be the spontaneous type, always heading off and having adventures. I travelled far and wide, sometimes alone, and used to enjoy the hot days of summer on various Greek beaches as well as wandering ar&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":153,"like_count":58,"has_summary":false,"last_poster_username":"Sparklesummers","category_id":19,"op_like_count":6,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":5391,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7545,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7671,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Travel insurance whilst taking zanubrutinib","id":16105,"title":"Travel insurance whilst taking zanubrutinib","slug":"travel-insurance-whilst-taking-zanubrutinib","posts_count":3,"reply_count":1,"highest_post_number":3,"image_url":null,"created_at":"2026-04-07T17:10:27.814Z","last_posted_at":"2026-04-08T09:32:02.000Z","bumped":true,"bumped_at":"2026-04-08T09:32:02.000Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Travel insurance whilst taking zanubrutinib","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":53,"like_count":5,"has_summary":false,"last_poster_username":"Buckeye","category_id":19,"op_like_count":0,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":8048,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Places that you love and lift your spirits","id":15948,"title":"Places that you love and lift your spirits","slug":"places-that-you-love-and-lift-your-spirits","posts_count":31,"reply_count":22,"highest_post_number":31,"image_url":"https://forum.bloodcancer.org.uk/uploads/db4078/optimized/2X/7/7af38b2fb234c9ede52e6ac9ad713dca3e5f5989_2_1024x473.jpeg","created_at":"2026-03-16T17:52:35.590Z","last_posted_at":"2026-04-07T07:30:06.606Z","bumped":true,"bumped_at":"2026-04-07T07:30:06.606Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hope everyone is having a good start to the week. \nSince my diagnosis holidays have pretty much been off the agenda. \nThis weekend just past my wife and I went for a one night stay not too far from home to see how I did. &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":172,"like_count":95,"has_summary":false,"last_poster_username":"DuncanB","category_id":19,"op_like_count":6,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":5391,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7545,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"A Day of Celebration, Gratitude and Reflection","id":16079,"title":"A Day of Celebration, Gratitude and Reflection","slug":"a-day-of-celebration-gratitude-and-reflection","posts_count":16,"reply_count":11,"highest_post_number":16,"image_url":null,"created_at":"2026-04-02T12:28:43.708Z","last_posted_at":"2026-04-04T21:24:34.384Z","bumped":true,"bumped_at":"2026-04-04T21:24:34.384Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Today marks the one year anniversary of my Bone Marrow Transplant. \nIt’s clearly a day of celebration and a milestone in my Blood Cancer Journey. \nIt’s also a day of gratitude and reflection too for me. \nI’m grateful to &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":82,"like_count":38,"has_summary":false,"last_poster_username":"Duncan","category_id":19,"op_like_count":9,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2543,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Bone Marrow Biopsy","id":16058,"title":"Bone Marrow Biopsy","slug":"bone-marrow-biopsy","posts_count":11,"reply_count":7,"highest_post_number":11,"image_url":null,"created_at":"2026-03-30T16:17:32.896Z","last_posted_at":"2026-04-04T09:21:05.620Z","bumped":true,"bumped_at":"2026-04-04T09:21:05.620Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Good afternoon, \nI am not sure if this is acceptable to post on here or not.  If not please remove.  I have drafted this following my own painful biopsy so that in future, should I need a second, I can refer to this so I&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"},{"id":71,"name":"anxiety","slug":"anxiety"}],"tags_descriptions":{},"views":153,"like_count":7,"has_summary":false,"last_poster_username":"DuncanB","category_id":19,"op_like_count":0,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7551,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7473,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Poem I Found on The National Bone Marrow Transplant Link Facebook Post","id":16085,"title":"Poem I Found on The National Bone Marrow Transplant Link Facebook Post","slug":"poem-i-found-on-the-national-bone-marrow-transplant-link-facebook-post","posts_count":6,"reply_count":3,"highest_post_number":6,"image_url":null,"created_at":"2026-04-03T13:11:31.105Z","last_posted_at":"2026-04-03T22:16:42.145Z","bumped":true,"bumped_at":"2026-04-03T22:16:42.145Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"A couple days ago, we unfortunately missed Doctor Appreciation Day.  Better late than never:)  Here is a poem of gratitude for those wonderful doctors. \nWhere Life Begins Again \nIn quiet halls where courage hums, \nWhere &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":48,"like_count":31,"has_summary":false,"last_poster_username":"Nichola75","category_id":19,"op_like_count":8,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"AML diagnosis and unsure about SCT","id":15607,"title":"AML diagnosis and unsure about SCT","slug":"aml-diagnosis-and-unsure-about-sct","posts_count":16,"reply_count":12,"highest_post_number":16,"image_url":null,"created_at":"2026-02-04T18:46:20.549Z","last_posted_at":"2026-04-02T19:00:54.783Z","bumped":true,"bumped_at":"2026-04-02T19:00:54.783Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi i am Graham 64 with an Acute myeloid leukaemia (AML) diagnosis last Nov and on my 2nd round chemo with Vixeos. It seems to be going well but i am unsure about Stem cell transplant given the risks. My consultant recomm&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":120,"like_count":54,"has_summary":false,"last_poster_username":"DuncanB","category_id":19,"op_like_count":4,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7777,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Holidays and sun screen","id":16033,"title":"Holidays and sun screen","slug":"holidays-and-sun-screen","posts_count":16,"reply_count":8,"highest_post_number":16,"image_url":null,"created_at":"2026-03-27T08:09:12.274Z","last_posted_at":"2026-04-01T05:41:17.270Z","bumped":true,"bumped_at":"2026-04-01T05:41:17.270Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi all, I’ve just recently been diagnosed with Essential thrombocythemia (&#39;ET&#39;) and I have some holidays booked this year. My treatment will be starting soon and this will be Hydroxycarbamide. I was told by the McMillan &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":155,"like_count":56,"has_summary":false,"last_poster_username":"IanB","category_id":19,"op_like_count":4,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":7967,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Hi my husband has been diagnosed with hairy cell leukemia","id":9781,"title":"Hi my husband has been diagnosed with hairy cell leukemia","slug":"hi-my-husband-has-been-diagnosed-with-hairy-cell-leukemia","posts_count":10,"reply_count":4,"highest_post_number":11,"image_url":null,"created_at":"2024-03-05T20:34:49.472Z","last_posted_at":"2026-03-30T17:05:34.025Z","bumped":true,"bumped_at":"2026-03-30T17:05:34.025Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi my husband has been diagnosed with hairy cell leukemia in October 2023.anyone here to talk to about this form of blood cancer and its symptoms?","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":310,"like_count":13,"has_summary":false,"last_poster_username":"Duncan","category_id":19,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":4342,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3906,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Is benecol safe?","id":16035,"title":"Is benecol safe?","slug":"is-benecol-safe","posts_count":4,"reply_count":2,"highest_post_number":4,"image_url":null,"created_at":"2026-03-27T08:25:49.749Z","last_posted_at":"2026-03-27T09:01:18.839Z","bumped":true,"bumped_at":"2026-03-27T09:01:18.839Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I have read that benecol might not be good for people with blood cancer. Has anyone come across this?","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":36,"name":"diet","slug":"diet"}],"tags_descriptions":{},"views":53,"like_count":6,"has_summary":false,"last_poster_username":"Ceri_BloodCancerUK","category_id":19,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8015,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Little help needed","id":16017,"title":"Little help needed","slug":"little-help-needed","posts_count":6,"reply_count":2,"highest_post_number":6,"image_url":null,"created_at":"2026-03-24T18:00:14.805Z","last_posted_at":"2026-03-26T08:08:56.168Z","bumped":true,"bumped_at":"2026-03-26T08:08:56.168Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi all, am having a bad day today and its against my nature. I am normally a very positive person but today  I am struggling. I start  my second round  of chemo tomorrow  am already on Hydroxycarbamide  but need Azacitid&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":84,"like_count":18,"has_summary":false,"last_poster_username":"Jules","category_id":19,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":5736,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":4854,"primary_group_id":43,"flair_group_id":43},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":2704,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Myelofibrosis patient","id":15832,"title":"Myelofibrosis patient","slug":"myelofibrosis-patient","posts_count":9,"reply_count":6,"highest_post_number":9,"image_url":null,"created_at":"2026-02-27T21:18:49.685Z","last_posted_at":"2026-03-23T21:11:27.029Z","bumped":true,"bumped_at":"2026-03-23T21:11:27.029Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi, \nI got diagnosed with MF in April 2024,I’ve had a transplant and have recovered without too much trouble. \nIf anyone here has been recently diagnosed,I’d  be happy to share my experience and tell you things that that&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":113,"like_count":31,"has_summary":false,"last_poster_username":"DuncanB","category_id":19,"op_like_count":6,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7889,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":4043,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"What do you track to keep you motivated?","id":15799,"title":"What do you track to keep you motivated?","slug":"what-do-you-track-to-keep-you-motivated","posts_count":70,"reply_count":57,"highest_post_number":70,"image_url":null,"created_at":"2026-02-24T19:37:54.060Z","last_posted_at":"2026-03-23T19:16:51.574Z","bumped":true,"bumped_at":"2026-03-23T19:16:51.574Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Maybe it’s the accountant in me but what I’ve found helpful to stay motivated is tracking especially after Bone Marrow Transplant. \nRight now I use a basic watch and app to track steps and sleep quality. \nI also started &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":257,"like_count":252,"has_summary":true,"last_poster_username":"DuncanB","category_id":19,"op_like_count":5,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7545,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3981,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Baby- High Platelets","id":8908,"title":"Baby- High Platelets","slug":"baby-high-platelets","posts_count":66,"reply_count":44,"highest_post_number":66,"image_url":null,"created_at":"2023-11-14T10:11:24.872Z","last_posted_at":"2026-03-23T10:18:08.339Z","bumped":true,"bumped_at":"2026-03-23T10:18:08.339Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hello \nI am new here, i have a 7m old baby girl who qas admitted to A&amp;E twice and got odd blood results. \n\n\nIn May she went in with Covid and suspected Sepsis after going pale and lethargic. Luckily no sepsis. \n\n\n10 days&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":6875,"like_count":109,"has_summary":true,"last_poster_username":"Ceri_BloodCancerUK","category_id":19,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":3843,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2019,"primary_group_id":43,"flair_group_id":43},{"extras":null,"description":"Frequent Poster","user_id":4444,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Supporting diet","id":15947,"title":"Supporting diet","slug":"supporting-diet","posts_count":7,"reply_count":3,"highest_post_number":7,"image_url":null,"created_at":"2026-03-16T17:01:56.875Z","last_posted_at":"2026-03-19T17:27:09.307Z","bumped":true,"bumped_at":"2026-03-19T17:27:09.307Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I have heard that papaya is very good for helping with low platelets. I would be interested in anyone’s experiences. Does it help with increasing platelet numbers, mine are very low. How does one use it, is it the fresh &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"}],"tags_descriptions":{},"views":74,"like_count":14,"has_summary":false,"last_poster_username":"rogerh","category_id":19,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":550,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Is a sore throat normal when starting hydroxycarbamide?","id":15934,"title":"Is a sore throat normal when starting hydroxycarbamide?","slug":"is-a-sore-throat-normal-when-starting-hydroxycarbamide","posts_count":5,"reply_count":0,"highest_post_number":5,"image_url":null,"created_at":"2026-03-13T19:17:45.757Z","last_posted_at":"2026-03-17T12:23:38.318Z","bumped":true,"bumped_at":"2026-03-17T12:23:38.318Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi \nI’ve just started treating my Essential thrombocythemia (&#39;ET&#39;) with hydroxycarbamide..I’ve felt terrible sick but also such a bad sore throat is this normal","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":76,"like_count":22,"has_summary":false,"last_poster_username":"Fiona_BloodCancerUK","category_id":19,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7538,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7915,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":5198,"primary_group_id":43,"flair_group_id":43}]},{"fancy_title":"The Beatles","id":15939,"title":"The Beatles","slug":"the-beatles","posts_count":6,"reply_count":2,"highest_post_number":6,"image_url":null,"created_at":"2026-03-14T14:03:25.048Z","last_posted_at":"2026-03-16T12:47:34.623Z","bumped":true,"bumped_at":"2026-03-16T12:47:34.623Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I’ve been rediscovering the Beatles! \nI’m a 60s child, old enough to remember Beatlemania, all those lovely girls screaming! \nI went to a boys only school, had no sisters, what an exciting introduction to the fairer sex. &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":196,"name":"music","slug":"music"}],"tags_descriptions":{},"views":62,"like_count":12,"has_summary":false,"last_poster_username":"GenesisDevice","category_id":19,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7915,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":4444,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Blood Cancer and the NHS","id":15937,"title":"Blood Cancer and the NHS","slug":"blood-cancer-and-the-nhs","posts_count":7,"reply_count":2,"highest_post_number":7,"image_url":null,"created_at":"2026-03-14T13:20:18.548Z","last_posted_at":"2026-03-15T21:28:34.649Z","bumped":true,"bumped_at":"2026-03-15T21:28:34.649Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"The haematologists I see here at Hammersmith Hospital are a great bunch, friendly and professional.   :grinning_face: \nRecently I was told I was on blood pressure meds that weren’t compatible with my blood cancer treatme&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":71,"name":"anxiety","slug":"anxiety"}],"tags_descriptions":{},"views":107,"like_count":25,"has_summary":false,"last_poster_username":"DuncanB","category_id":19,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7915,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":1285,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Myleofibrosis diagnosis","id":15797,"title":"Myleofibrosis diagnosis","slug":"myleofibrosis-diagnosis","posts_count":18,"reply_count":13,"highest_post_number":18,"image_url":null,"created_at":"2026-02-24T16:46:13.603Z","last_posted_at":"2026-03-15T18:25:24.634Z","bumped":true,"bumped_at":"2026-03-15T18:25:24.634Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi I was diagnosed with Myleofibrosis in March last year, having had Thrombocythemis Jak2 positive for 11 years. I am currently awaiting a possible Bone Marrow Transplant. I am currently on Hydroxycarbamide and weekly in&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":104,"like_count":54,"has_summary":false,"last_poster_username":"DuncanB","category_id":19,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7872,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2595,"primary_group_id":43,"flair_group_id":43},{"extras":"latest","description":"Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"I&rsquo;ve recently started Besremi - side effects!","id":15891,"title":"I've recently started Besremi - side effects!","slug":"ive-recently-started-besremi-side-effects","posts_count":3,"reply_count":0,"highest_post_number":3,"image_url":null,"created_at":"2026-03-09T19:00:28.747Z","last_posted_at":"2026-03-10T11:06:25.923Z","bumped":true,"bumped_at":"2026-03-10T11:06:25.923Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hello, I’m new here. I’ve recently started Besremi, going to have my second injection this week. It seems as though the side effects have gotten worse throughout my first 2 weeks. Awful stomach cramps, bathroom issues.  &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":331,"name":"essential-thrombocythemia","slug":"essential-thrombocythemia"}],"tags_descriptions":{},"views":152,"like_count":3,"has_summary":false,"last_poster_username":"Bonny16","category_id":19,"op_like_count":0,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7922,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":5736,"primary_group_id":null,"flair_group_id":null}]}]}}