{"users":[{"id":2,"username":"BloodCancerUK","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/bloodcanceruk/{size}/12_2.png","trust_level":4},{"id":40,"username":"JoshuaBloodwise","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/j/e79b87/{size}.png","trust_level":2},{"id":2543,"username":"ChrissyD","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/c/ed8c4c/{size}.png","trust_level":2},{"id":6250,"username":"The_Jaybird","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/t/46a35a/{size}.png","trust_level":1},{"id":6445,"username":"Serina","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/8e7dd6/{size}.png","trust_level":1},{"id":6464,"username":"MumOfTwoBoys","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/m/9fc348/{size}.png","trust_level":1},{"id":1267,"username":"2DB","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/2db/{size}/1031_2.png","trust_level":3},{"id":35,"username":"Erica","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/erica/{size}/797_2.png","trust_level":3},{"id":6574,"username":"Tash","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/t/a9a28c/{size}.png","trust_level":1},{"id":8064,"username":"Lucca","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/lucca/{size}/2297_2.png","trust_level":1},{"id":7616,"username":"DuncanB","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/d/9de053/{size}.png","trust_level":3},{"id":1000,"username":"Willow","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/willow/{size}/798_2.png","trust_level":3},{"id":395,"username":"Nichola75","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/nichola75/{size}/2256_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":2},{"id":7363,"username":"Ceri_BloodCancerUK","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/ceri_bloodcanceruk/{size}/2120_2.png","admin":true,"moderator":true,"trust_level":4},{"id":8083,"username":"Nataliex","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/n/ecb155/{size}.png","trust_level":0},{"id":6414,"username":"GenesisDevice","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/genesisdevice/{size}/1995_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":3403,"username":"Duncan","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/duncan/{size}/1524_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":8107,"username":"BenAnderson","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/b/f17d59/{size}.png","trust_level":1},{"id":7872,"username":"SCcoop","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/c4cdca/{size}.png","trust_level":1},{"id":8112,"username":"Betty","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/b/0ea827/{size}.png","trust_level":0},{"id":8090,"username":"Markd","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/m/839c29/{size}.png","trust_level":1},{"id":5477,"username":"Sisi","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/e9a140/{size}.png","trust_level":2},{"id":3022,"username":"Lyndam","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/l/6de8d8/{size}.png","trust_level":1},{"id":3449,"username":"Unclejack","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/u/e19adc/{size}.png","trust_level":2},{"id":3707,"username":"clickinhistory","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/c/e95f7d/{size}.png","trust_level":2},{"id":1285,"username":"Rammie18","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/rammie18/{size}/817_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":2},{"id":4444,"username":"Lucky","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/l/e9c0ed/{size}.png","trust_level":2},{"id":4440,"username":"Silke","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/a5b964/{size}.png","trust_level":2},{"id":8061,"username":"DebScott","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/d/e36b37/{size}.png","trust_level":0},{"id":4548,"username":"Heidi-J-BloodCancerUK","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/heidi-j-bloodcanceruk/{size}/1830_2.png","primary_group_name":"BloodCancerUK_Nurses","flair_name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_group_id":43,"admin":true,"moderator":true,"trust_level":3},{"id":8044,"username":"Karen58","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/k/eada6e/{size}.png","trust_level":1},{"id":7779,"username":"twohorsepony","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/t/e480ec/{size}.png","trust_level":1},{"id":7860,"username":"Igor","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/i/dec6dc/{size}.png","trust_level":1},{"id":7473,"username":"Hughbie","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/hughbie/{size}/2286_2.png","trust_level":2},{"id":6601,"username":"Jules17","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/j/9fc29f/{size}.png","trust_level":1},{"id":6790,"username":"RA2000","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/r/9fc29f/{size}.png","trust_level":2},{"id":6775,"username":"Aidan","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/aidan/{size}/2052_2.png","trust_level":2},{"id":6517,"username":"Mindovermedicine","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/m/cc9497/{size}.png","trust_level":0},{"id":2112,"username":"KateS","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/k/d6d6ee/{size}.png","trust_level":2},{"id":7955,"username":"SunFlower","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/a5b964/{size}.png","trust_level":1},{"id":5181,"username":"Ta5","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/t/b782af/{size}.png","trust_level":1},{"id":5183,"username":"liza","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/l/a88e4f/{size}.png","trust_level":0},{"id":1935,"username":"Chrispy","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/c/c2a13f/{size}.png","trust_level":2},{"id":6366,"username":"Howey","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/h/a587f6/{size}.png","trust_level":1},{"id":8004,"username":"paulGrayson","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/p/59ef9b/{size}.png","trust_level":1},{"id":1687,"username":"Sassy12345","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/47e85d/{size}.png","trust_level":1},{"id":1116,"username":"GrandmaJo","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/grandmajo/{size}/811_2.png","trust_level":2},{"id":2405,"username":"Mike1","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/m/e19adc/{size}.png","trust_level":1},{"id":2704,"username":"Jules","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/jules/{size}/2216_2.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":3},{"id":7528,"username":"Eli","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/e/a9a28c/{size}.png","trust_level":1},{"id":4780,"username":"Susiewest","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/b487fb/{size}.png","trust_level":1},{"id":4699,"username":"CONFUSED","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/c/f08c70/{size}.png","trust_level":1},{"id":3149,"username":"Iain","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/i/d2c977/{size}.png","trust_level":2},{"id":8002,"username":"Hill17","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/h/8dc957/{size}.png","trust_level":0},{"id":6798,"username":"angelle41","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/a/a87d85/{size}.png","trust_level":0},{"id":4854,"username":"Emma_BloodCancerUK","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/e/43a26b/{size}.png","primary_group_name":"BloodCancerUK_Nurses","flair_name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_group_id":43,"admin":true,"moderator":true,"trust_level":4},{"id":2757,"username":"turan.simsek","avatar_template":"/user_avatar/forum.bloodcancer.org.uk/turan.simsek/{size}/2278_2.png","trust_level":1},{"id":6597,"username":"CathyP","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/c/dec6dc/{size}.png","trust_level":1},{"id":7494,"username":"Byrnebaby","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/b/9fc348/{size}.png","trust_level":2},{"id":5693,"username":"jen1204","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/j/ea5d25/{size}.png","trust_level":1},{"id":5248,"username":"Spen68","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/s/ccd318/{size}.png","trust_level":2},{"id":5736,"username":"Bonny16","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/b/4bbf92/{size}.png","trust_level":2},{"id":7928,"username":"MrsB","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/m/8797f3/{size}.png","trust_level":1},{"id":7527,"username":"GillyD-L","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/g/f19dbf/{size}.png","trust_level":0},{"id":3429,"username":"Jupiter","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/j/53a042/{size}.png","trust_level":1},{"id":7440,"username":"evanslynwen","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/e/41988e/{size}.png","trust_level":1},{"id":7910,"username":"Georgia1234","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/g/c0e974/{size}.png","trust_level":1},{"id":7041,"username":"Marijus89","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/m/a698b9/{size}.png","trust_level":1},{"id":7047,"username":"Hoggie","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/h/dbc845/{size}.png","trust_level":0},{"id":410,"username":"Franko","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/f/7ab992/{size}.png","primary_group_name":"FSVs","flair_name":"FSVs","flair_url":"bolt","flair_group_id":42,"trust_level":2},{"id":7909,"username":"bplunn","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/b/848f3c/{size}.png","trust_level":1},{"id":7893,"username":"alex2","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/a/45deac/{size}.png","trust_level":1},{"id":7889,"username":"Landys3","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/l/8491ac/{size}.png","trust_level":1},{"id":3981,"username":"Jonpd","avatar_template":"https://avatars.discourse-cdn.com/v4/letter/j/db5fbb/{size}.png","trust_level":2}],"primary_groups":[{"id":42,"name":"FSVs"},{"id":43,"name":"BloodCancerUK_Nurses"}],"flair_groups":[{"id":42,"name":"FSVs","flair_url":"bolt","flair_bg_color":"","flair_color":""},{"id":43,"name":"BloodCancerUK_Nurses","flair_url":"user-nurse","flair_bg_color":"","flair_color":""}],"topic_list":{"can_create_topic":false,"more_topics_url":"/c/recent-diagnosis/5?page=1","per_page":30,"top_tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"},{"id":71,"name":"anxiety","slug":"anxiety"},{"id":26,"name":"mgus","slug":"mgus"},{"id":5,"name":"leukaemia","slug":"leukaemia"},{"id":24,"name":"mpn","slug":"mpn"},{"id":164,"name":"newly-diagnosed","slug":"newly-diagnosed"},{"id":12,"name":"cll","slug":"cll"},{"id":197,"name":"chronic-blood-cancer","slug":"chronic-blood-cancer"},{"id":315,"name":"peer-support","slug":"peer-support"},{"id":146,"name":"et","slug":"et"},{"id":10,"name":"aml","slug":"aml"}],"topics":[{"fancy_title":"About the Recent diagnosis category","id":13,"title":"About the Recent diagnosis category","slug":"about-the-recent-diagnosis-category","posts_count":11,"reply_count":4,"highest_post_number":11,"image_url":null,"created_at":"2018-03-16T11:04:28.728Z","last_posted_at":"2025-04-28T07:24:27.640Z","bumped":true,"bumped_at":"2025-04-28T07:24:27.640Z","archetype":"regular","unseen":false,"pinned":true,"unpinned":null,"excerpt":"If you, or someone you know, have recently been diagnosed with blood cancer, then this is somewhere you can share any thoughts, feelings and concerns with people who have been where you are now.","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":2027,"like_count":1,"has_summary":false,"last_poster_username":"Serina","category_id":5,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":2,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":40,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2543,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6250,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":6445,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Myeloma - anyone else with triple hit/high risk","id":13344,"title":"Myeloma - anyone else with triple hit/high risk","slug":"myeloma-anyone-else-with-triple-hit-high-risk","posts_count":18,"reply_count":15,"highest_post_number":18,"image_url":null,"created_at":"2025-04-24T11:44:32.888Z","last_posted_at":"2026-04-20T08:53:09.000Z","bumped":true,"bumped_at":"2026-04-20T08:53:09.000Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi my husband was diagnosed with myeloma while in hospital a few weeks ago. He had his second chemo yesterday (DVDT with thalidomide). He has 70% plasma cell burden and 3 high risk cytogenetics (known as triple hit). He &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":638,"like_count":30,"has_summary":false,"last_poster_username":"MumOfTwoBoys","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":6464,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1267,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6574,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"A 36-year-old Mum diagnosed with high risk MDS","id":16133,"title":"A 36-year-old Mum diagnosed with high risk MDS","slug":"a-36-year-old-mum-diagnosed-with-high-risk-mds","posts_count":8,"reply_count":3,"highest_post_number":8,"image_url":null,"created_at":"2026-04-10T08:27:12.919Z","last_posted_at":"2026-04-20T08:52:58.326Z","bumped":true,"bumped_at":"2026-04-20T08:52:58.326Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"On the 26th of November 2025, I was diagnosed with Myelodysplastic syndrome (&#39;MDS&#39;) with 12% blasts. \nAt 36 years old, and a mum to a beautiful almost two-year-old daughter, my world changed overnight. \nTreatment started&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":25,"name":"mds","slug":"mds"},{"id":271,"name":"myelodysplastic-syndrome","slug":"myelodysplastic-syndrome"}],"tags_descriptions":{},"views":70,"like_count":35,"has_summary":false,"last_poster_username":"Ceri_BloodCancerUK","category_id":5,"op_like_count":4,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8064,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Secondary AML with TP53 Mutation","id":16168,"title":"Secondary AML with TP53 Mutation","slug":"secondary-aml-with-tp53-mutation","posts_count":5,"reply_count":0,"highest_post_number":5,"image_url":null,"created_at":"2026-04-15T13:12:06.429Z","last_posted_at":"2026-04-20T08:10:22.050Z","bumped":true,"bumped_at":"2026-04-20T08:10:22.050Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"We have been informed that my 75 year old father’s blood condition (Polycythaemia vera (&#39;PV&#39;)) has likely developed into secondary acute myeloid leukaemia with TP53 mutation (multi-hit). We are still awaiting further bio&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"}],"tags_descriptions":{},"views":42,"like_count":5,"has_summary":false,"last_poster_username":"Ceri_BloodCancerUK","category_id":5,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8083,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Myelofibrosis diagnosis - Grade 3 at diagnosis","id":16198,"title":"Myelofibrosis diagnosis - Grade 3 at diagnosis","slug":"myelofibrosis-diagnosis-grade-3-at-diagnosis","posts_count":4,"reply_count":1,"highest_post_number":4,"image_url":null,"created_at":"2026-04-18T22:01:17.709Z","last_posted_at":"2026-04-20T07:55:50.532Z","bumped":true,"bumped_at":"2026-04-20T07:55:50.532Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi everyone, \nRecently, I’ve been diagnosed with Myelofibrosis, (and JAk2 mutation) after a portal vein thrombosis that extended into superior mesenteric vein and splenic vein - previously totally healthy, 48 year old (o&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":252,"name":"myelofibrosis","slug":"myelofibrosis"}],"tags_descriptions":{},"views":29,"like_count":5,"has_summary":false,"last_poster_username":"SCcoop","category_id":5,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8107,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7872,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Leukemia","id":16206,"title":"Leukemia","slug":"leukemia","posts_count":2,"reply_count":0,"highest_post_number":2,"image_url":null,"created_at":"2026-04-20T01:01:19.385Z","last_posted_at":"2026-04-20T06:19:31.485Z","bumped":true,"bumped_at":"2026-04-20T06:19:31.485Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I was diagnosed in November 2025 with Chronic myeloid leukaemia (&#39;CML&#39;) with the P190 oncogene which from my understanding is a very rare and aggressive disease. I was treating with the same oncologist since 2010 for fac&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"}],"tags_descriptions":{},"views":13,"like_count":3,"has_summary":false,"last_poster_username":"Ceri_BloodCancerUK","category_id":5,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8112,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Jak2 confirmed","id":16173,"title":"Jak2 confirmed","slug":"jak2-confirmed","posts_count":7,"reply_count":2,"highest_post_number":7,"image_url":null,"created_at":"2026-04-16T12:06:44.994Z","last_posted_at":"2026-04-16T22:23:09.795Z","bumped":true,"bumped_at":"2026-04-16T22:23:09.795Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi there \nAll new to me at the moment . Two weeks ago was told I have jak2 mutation. I’d never heard of it and so I googled it and since then have been in panic mode. I had a bad knee injury in Oct 2024 that gave me a ca&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":55,"like_count":7,"has_summary":false,"last_poster_username":"Duncan","category_id":5,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8090,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Recent diagnosis CMML","id":11835,"title":"Recent diagnosis CMML","slug":"recent-diagnosis-cmml","posts_count":698,"reply_count":506,"highest_post_number":701,"image_url":null,"created_at":"2024-11-30T12:01:57.561Z","last_posted_at":"2026-04-16T17:38:53.518Z","bumped":true,"bumped_at":"2026-04-16T17:38:53.518Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi! Finally worked out how to post! Hope this is in the right category. I seem to be working my way through varous chat groups / FB groups. So apologies if anyone reading this has read elsewhere!  My husband (73 yrs) was&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":197,"name":"chronic-blood-cancer","slug":"chronic-blood-cancer"},{"id":315,"name":"peer-support","slug":"peer-support"},{"id":14,"name":"cmml","slug":"cmml"},{"id":357,"name":"rare-type","slug":"rare-type"}],"tags_descriptions":{},"views":5960,"like_count":1328,"has_summary":true,"last_poster_username":"Willow","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":5477,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3022,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3449,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Now part of the polycythaemia vera posse","id":8036,"title":"Now part of the polycythaemia vera posse","slug":"now-part-of-the-polycythaemia-vera-posse","posts_count":345,"reply_count":282,"highest_post_number":347,"image_url":null,"created_at":"2023-06-13T23:09:05.861Z","last_posted_at":"2026-04-16T15:04:30.047Z","bumped":true,"bumped_at":"2026-04-16T15:04:30.047Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hey there folks. After testing positive for the JAK2 gene mutation I had my first and hopefully only bone marrow aspiration done recently and got a diagnosis of polycythaemia vera last week. Feeling understandably shocke&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":24,"name":"mpn","slug":"mpn"},{"id":197,"name":"chronic-blood-cancer","slug":"chronic-blood-cancer"},{"id":184,"name":"pv","slug":"pv"}],"tags_descriptions":{},"views":6843,"like_count":1271,"has_summary":true,"last_poster_username":"Duncan","category_id":5,"op_like_count":9,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":3707,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1285,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":4444,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"CMML - A rare diagnosis","id":8093,"title":"CMML - A rare diagnosis","slug":"cmml-a-rare-diagnosis","posts_count":248,"reply_count":155,"highest_post_number":254,"image_url":null,"created_at":"2023-06-24T14:50:44.023Z","last_posted_at":"2026-04-16T08:14:38.972Z","bumped":true,"bumped_at":"2026-04-16T08:14:38.972Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Seems to be a rare type, anyone else have this diagnosis?","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":24,"name":"mpn","slug":"mpn"},{"id":5,"name":"leukaemia","slug":"leukaemia"},{"id":25,"name":"mds","slug":"mds"}],"tags_descriptions":{},"views":6330,"like_count":252,"has_summary":true,"last_poster_username":"ChrissyD","category_id":5,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":3449,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":4440,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":5477,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":2543,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Recent diagnosis, struggling with aspirin","id":16125,"title":"Recent diagnosis, struggling with aspirin","slug":"recent-diagnosis-struggling-with-aspirin","posts_count":5,"reply_count":1,"highest_post_number":5,"image_url":null,"created_at":"2026-04-09T10:39:45.168Z","last_posted_at":"2026-04-13T18:44:53.544Z","bumped":true,"bumped_at":"2026-04-13T18:44:53.544Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi everyone, I hope this finds you well :slight_smile: \nI was relieved to find this forum after hours (days!) of google research, I’m hoping there is someone else with similar issues. \nI was diagnosed at the end of March&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":86,"like_count":19,"has_summary":false,"last_poster_username":"Duncan","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8061,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":4548,"primary_group_id":43,"flair_group_id":43},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Diagnosed with Follicular Lymphoma 2 weeks ago","id":16098,"title":"Diagnosed with Follicular Lymphoma 2 weeks ago","slug":"diagnosed-with-follicular-lymphoma-2-weeks-ago","posts_count":17,"reply_count":10,"highest_post_number":17,"image_url":null,"created_at":"2026-04-05T17:45:14.809Z","last_posted_at":"2026-04-10T22:07:13.384Z","bumped":true,"bumped_at":"2026-04-10T22:07:13.384Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi everyone, I have just been diagnosed 2 weeks ago with Follicular Lymphoma which is low grade and slow grown . My head is absolutely all over the place. I have 2 tumours deep in my abdomen,  one small and one big which&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":110,"like_count":52,"has_summary":false,"last_poster_username":"Nichola75","category_id":5,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":8044,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Recently diagnosed with MDS with a DDX41 variant, need support from others and shared stories","id":15612,"title":"Recently diagnosed with MDS with a DDX41 variant, need support from others and shared stories","slug":"recently-diagnosed-with-mds-with-a-ddx41-variant-need-support-from-others-and-shared-stories","posts_count":24,"reply_count":14,"highest_post_number":24,"image_url":null,"created_at":"2026-02-04T22:05:12.668Z","last_posted_at":"2026-04-08T17:29:44.507Z","bumped":true,"bumped_at":"2026-04-08T17:29:44.507Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hello to everyone. I am a 61 year old white male. During a routine blood test CBC it was discovered that my white blood cell, Platelets, and B12 levels were low. After weekly B12 injections, 2 bone marrow biopsies, I was&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"},{"id":71,"name":"anxiety","slug":"anxiety"},{"id":164,"name":"newly-diagnosed","slug":"newly-diagnosed"}],"tags_descriptions":{},"views":425,"like_count":25,"has_summary":false,"last_poster_username":"Hughbie","category_id":5,"op_like_count":0,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7779,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2543,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7860,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7473,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Just diagnosed with Essential Thrombocythaemia","id":13560,"title":"Just diagnosed with Essential Thrombocythaemia","slug":"just-diagnosed-with-essential-thrombocythaemia","posts_count":67,"reply_count":50,"highest_post_number":67,"image_url":null,"created_at":"2025-05-27T18:21:37.804Z","last_posted_at":"2026-04-06T20:34:15.595Z","bumped":true,"bumped_at":"2026-04-06T20:34:15.595Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi all, just want to introduce myself, I’m Julia. I found out on 21st May that I have Essential thrombocythemia (ET), the JAK-2 kind. I’m a bit shocked and a bit scared but also relieved to know what is wrong with me aft&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":24,"name":"mpn","slug":"mpn"},{"id":146,"name":"et","slug":"et"},{"id":145,"name":"essential-thrombocythaemia","slug":"essential-thrombocythaemia"},{"id":164,"name":"newly-diagnosed","slug":"newly-diagnosed"}],"tags_descriptions":{},"views":1632,"like_count":125,"has_summary":true,"last_poster_username":"Duncan","category_id":5,"op_like_count":10,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":6601,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6790,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6775,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6517,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Anyone else with MDS/ MPN overlap?","id":16060,"title":"Anyone else with MDS/ MPN overlap?","slug":"anyone-else-with-mds-mpn-overlap","posts_count":7,"reply_count":5,"highest_post_number":7,"image_url":null,"created_at":"2026-03-30T17:13:45.924Z","last_posted_at":"2026-04-03T12:47:55.928Z","bumped":true,"bumped_at":"2026-04-03T12:47:55.928Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"And a gene profile of SF3B1, JAK2, IDH2, SRSF2; karyotype 46 XY \nIt apparently means my overlap profile is uncategorised which.i assume means its relatively rare. \nHowever I’m throwing it out there in case anyone else ha&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":381,"name":"mds-mpn","slug":"mds-mpn"}],"tags_descriptions":{},"views":93,"like_count":12,"has_summary":false,"last_poster_username":"Hughbie","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":"latest","description":"Original Poster, Most Recent Poster","user_id":7473,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":2112,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"What questions to ask?","id":16057,"title":"What questions to ask?","slug":"what-questions-to-ask","posts_count":7,"reply_count":2,"highest_post_number":7,"image_url":null,"created_at":"2026-03-30T13:45:04.096Z","last_posted_at":"2026-04-01T11:21:43.251Z","bumped":true,"bumped_at":"2026-04-01T11:21:43.251Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Which questions did you ask / do you wish you asked when discussing diagnosis and treatment with haematology? \nFollowing 1st bone marrow test a few weeks ago (not a good sample), husband has been given diagnosis hairy ce&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"}],"tags_descriptions":{},"views":77,"like_count":26,"has_summary":false,"last_poster_username":"DuncanB","category_id":5,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7955,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Husband (36yo) diagnosed with CML","id":11184,"title":"Husband (36yo) diagnosed with CML","slug":"husband-36yo-diagnosed-with-cml","posts_count":39,"reply_count":25,"highest_post_number":39,"image_url":null,"created_at":"2024-09-14T14:01:03.113Z","last_posted_at":"2026-03-31T19:57:47.988Z","bumped":true,"bumped_at":"2026-03-31T19:57:47.988Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"My husband, who’s just turned 36 years old, was diagnosed with Chronic myeloid leukaemia earlier this week. We have a 13 month old and a 3 year old. It feels like the bright future we thought we were going to have has be&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":5,"name":"leukaemia","slug":"leukaemia"},{"id":13,"name":"cml","slug":"cml"},{"id":98,"name":"mental-health","slug":"mental-health"}],"tags_descriptions":{},"views":1724,"like_count":157,"has_summary":false,"last_poster_username":"paulGrayson","category_id":5,"op_like_count":7,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":5181,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":5183,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1935,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6366,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":8004,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Not sure where to begin&hellip;newly diagnosed","id":3887,"title":"Not sure where to begin...newly diagnosed","slug":"not-sure-where-to-begin-newly-diagnosed","posts_count":61,"reply_count":40,"highest_post_number":61,"image_url":null,"created_at":"2021-05-07T08:47:35.453Z","last_posted_at":"2026-03-26T08:33:59.696Z","bumped":true,"bumped_at":"2026-03-26T08:33:59.696Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi, this is my first post so not sure if I’m in the right place, but here goes. I had surgery on the 1st April for removal of ovaries and Fallopian tubes due to endometriosis. Op went well and I’ve been recovering. Tuesd&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":164,"name":"newly-diagnosed","slug":"newly-diagnosed"},{"id":19,"name":"lymphoma","slug":"lymphoma"},{"id":281,"name":"dlbcl","slug":"dlbcl"},{"id":245,"name":"high-grade-nhl","slug":"high-grade-nhl"}],"tags_descriptions":{},"views":2882,"like_count":147,"has_summary":true,"last_poster_username":"Jules","category_id":5,"op_like_count":6,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":1687,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":1116,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2405,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":2704,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Found out I am jak2 positive, in need of some support and positivity","id":15120,"title":"Found out I am jak2 positive, in need of some support and positivity","slug":"found-out-i-am-jak2-positive-in-need-of-some-support-and-positivity","posts_count":28,"reply_count":20,"highest_post_number":28,"image_url":null,"created_at":"2025-12-09T06:34:48.124Z","last_posted_at":"2026-03-25T14:55:55.139Z","bumped":true,"bumped_at":"2026-03-25T14:55:55.139Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi everyone, I am a 38yr old male living with cerebral palsy who also recently got diagnosed with stage 1-2 CKD. Anyway my HCT has been between 49.2 and 51.2 since 2017 along with HGB 16.4-17.1 so my GP sent me to a hema&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"}],"tags_descriptions":{},"views":660,"like_count":63,"has_summary":false,"last_poster_username":"Duncan","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7528,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":4780,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1000,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Help - Am I diagnosed or not?","id":10392,"title":"Help - Am I diagnosed or not?","slug":"help-am-i-diagnosed-or-not","posts_count":8,"reply_count":3,"highest_post_number":8,"image_url":null,"created_at":"2024-05-17T11:20:45.998Z","last_posted_at":"2026-03-24T11:36:00.821Z","bumped":true,"bumped_at":"2026-03-24T11:36:00.821Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I have had numerous tests and scans for an enlarged spleen and other symptoms. My recent CT PET scan showed the enlarged spleen but not much else. In my appointment this week the Hematologist said the only cause is likel&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":678,"like_count":25,"has_summary":false,"last_poster_username":"Erica","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":4699,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3149,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2704,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":8002,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Diagnosed with PV at 44","id":13900,"title":"Diagnosed with PV at 44","slug":"diagnosed-with-pv-at-44","posts_count":6,"reply_count":0,"highest_post_number":6,"image_url":null,"created_at":"2025-07-11T12:08:07.364Z","last_posted_at":"2026-03-23T12:08:55.865Z","bumped":true,"bumped_at":"2026-03-23T12:08:55.865Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I appreciate discovering this site after being diagnosed with Polycythaemia vera (PV). It’s surprising because I’m 44, and it appears this is less common for my age group. I had my 2 weeks of shock and emotions, but know&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":29,"name":"family","slug":"family"},{"id":186,"name":"polycythaemia-vera","slug":"polycythaemia-vera"},{"id":36,"name":"diet","slug":"diet"}],"tags_descriptions":{},"views":158,"like_count":23,"has_summary":false,"last_poster_username":"turan.simsek","category_id":5,"op_like_count":5,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":6798,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":4854,"primary_group_id":43,"flair_group_id":43},{"extras":null,"description":"Frequent Poster","user_id":1285,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":2757,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Diagnosed today with CMML","id":14112,"title":"Diagnosed today with CMML","slug":"diagnosed-today-with-cmml","posts_count":56,"reply_count":29,"highest_post_number":56,"image_url":null,"created_at":"2025-08-05T22:15:18.887Z","last_posted_at":"2026-03-23T09:09:17.264Z","bumped":true,"bumped_at":"2026-03-23T09:09:17.264Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi there, \nWell after many weeks of waiting, I finally have a diagnosis of Chronic myelomonocytic leukaemia (CMML).  Despite the consultant telling me this is “low risk” and not to worry, I am of course flapping a bit an&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":1016,"like_count":107,"has_summary":true,"last_poster_username":"Erica","category_id":5,"op_like_count":5,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":6597,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3022,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":2543,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":5477,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Diagnosed yesterday","id":15048,"title":"Diagnosed yesterday","slug":"diagnosed-yesterday","posts_count":227,"reply_count":185,"highest_post_number":228,"image_url":null,"created_at":"2025-12-02T15:07:46.122Z","last_posted_at":"2026-03-20T13:48:52.916Z","bumped":true,"bumped_at":"2026-03-20T13:48:52.916Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi, this has come completely out of the blue after routine blood test, my paraprotein was 31.14 kappa igG and my mri and bone marrow biouall clear, it’s my FLC that has surprised them at 275, so they are having a MDT mee&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":71,"name":"anxiety","slug":"anxiety"},{"id":23,"name":"myeloma","slug":"myeloma"},{"id":265,"name":"clinical-trials","slug":"clinical-trials"}],"tags_descriptions":{},"views":2223,"like_count":357,"has_summary":true,"last_poster_username":"Nichola75","category_id":5,"op_like_count":4,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7494,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1267,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Recent diagnosis of Leukemia","id":12018,"title":"Recent diagnosis of Leukemia","slug":"recent-diagnosis-of-leukemia","posts_count":16,"reply_count":12,"highest_post_number":16,"image_url":null,"created_at":"2024-12-18T21:13:42.237Z","last_posted_at":"2026-03-19T07:25:34.257Z","bumped":true,"bumped_at":"2026-03-19T07:25:34.257Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I recently got diagnosed with chronic myeloid leukemia and started treatment a week ago and I’m getting weekly blood work done. My 1st blood work came back with my platelets even higher (1712) than they were to begin wit&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"}],"tags_descriptions":{},"views":421,"like_count":18,"has_summary":false,"last_poster_username":"Bonny16","category_id":5,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":5693,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":5248,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":1935,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":5736,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Newly diagnosed with ET &amp; learning as I go…","id":15902,"title":"Newly diagnosed with ET & learning as I go…","slug":"newly-diagnosed-with-et-learning-as-i-go","posts_count":5,"reply_count":0,"highest_post_number":5,"image_url":null,"created_at":"2026-03-10T15:19:30.333Z","last_posted_at":"2026-03-13T15:17:36.185Z","bumped":true,"bumped_at":"2026-03-13T15:17:36.185Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi everyone, recently diagnosed with Essential thrombocythemia (&#39;ET&#39;), currently on aspirin with a platelet count of high 900’s, haematologist wants to “watch &amp; wait” for the time being before putting me on treatment. ( &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":138,"like_count":22,"has_summary":false,"last_poster_username":"Emma_BloodCancerUK","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7928,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":4854,"primary_group_id":43,"flair_group_id":43}]},{"fancy_title":"ET &amp; palpitations?","id":15927,"title":"ET & palpitations?","slug":"et-palpitations","posts_count":5,"reply_count":2,"highest_post_number":5,"image_url":null,"created_at":"2026-03-12T17:51:50.582Z","last_posted_at":"2026-03-13T13:47:52.651Z","bumped":true,"bumped_at":"2026-03-13T13:47:52.651Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I recently started taking HU for Essential thrombocythemia (&#39;ET&#39;). Since then I have been having lots of palpitations which I have never had before. My Apple Watch, with the Qaly app, is saying I am having afib, ventricu&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":64,"like_count":18,"has_summary":false,"last_poster_username":"Emma_BloodCancerUK","category_id":5,"op_like_count":5,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7527,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":4854,"primary_group_id":43,"flair_group_id":43}]},{"fancy_title":"AML, TP53 and chromosome defects","id":8035,"title":"AML, TP53 and chromosome defects","slug":"aml-tp53-and-chromosome-defects","posts_count":10,"reply_count":2,"highest_post_number":10,"image_url":null,"created_at":"2023-06-13T21:05:43.074Z","last_posted_at":"2026-03-09T11:02:01.933Z","bumped":true,"bumped_at":"2026-03-09T11:02:01.933Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi, my Mum was recently diagnosed with Acute Myeloid Leukaemia. We were told at the initial diagnosis meeting about the option of intensive chemo but were then just awaiting lung and heart scans. \nWhen we returned, the s&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[],"tags_descriptions":{},"views":1046,"like_count":17,"has_summary":false,"last_poster_username":"Ceri_BloodCancerUK","category_id":5,"op_like_count":1,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":3429,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":35,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":395,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":7440,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":7363,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"Aml tp53","id":15873,"title":"Aml tp53","slug":"aml-tp53","posts_count":5,"reply_count":2,"highest_post_number":5,"image_url":null,"created_at":"2026-03-06T20:59:46.951Z","last_posted_at":"2026-03-07T23:44:58.515Z","bumped":true,"bumped_at":"2026-03-07T23:44:58.515Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hi everyone, \nMy dad was recently diagnosed with Acute Myeloid Leukaemia (Acute myeloid leukaemia (‘Acute myeloid leukaemia (&#39;AML&#39;)’)) with a TP53 mutation and at least 3 chromosome abnormalities. His bone marrow blasts &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":1,"name":"blood-cancer","slug":"blood-cancer"}],"tags_descriptions":{},"views":90,"like_count":15,"has_summary":false,"last_poster_username":"Duncan","category_id":5,"op_like_count":3,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7910,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7616,"primary_group_id":null,"flair_group_id":null},{"extras":"latest","description":"Most Recent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42}]},{"fancy_title":"Platelets suddenly decreased ET","id":14318,"title":"Platelets suddenly decreased ET","slug":"platelets-suddenly-decreased-et","posts_count":10,"reply_count":5,"highest_post_number":10,"image_url":null,"created_at":"2025-08-28T11:28:11.209Z","last_posted_at":"2026-03-06T15:47:37.993Z","bumped":true,"bumped_at":"2026-03-06T15:47:37.993Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"Hello, 2 years ago i have diagnosis Essential thrombocythemia (ET) - Essential thrombocythemia, and my platelets increased until 900, and this summer begining was 1300 , doctors suggested using interferon, but today i ge&hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":331,"name":"essential-thrombocythemia","slug":"essential-thrombocythemia"}],"tags_descriptions":{},"views":594,"like_count":29,"has_summary":false,"last_poster_username":"bplunn","category_id":5,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7041,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7047,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":4854,"primary_group_id":43,"flair_group_id":43},{"extras":null,"description":"Frequent Poster","user_id":410,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":7909,"primary_group_id":null,"flair_group_id":null}]},{"fancy_title":"I was diagnosed recently with MF. Want to ask about Fatiue","id":15839,"title":"I was diagnosed recently with MF. Want to ask about Fatiue","slug":"i-was-diagnosed-recently-with-mf-want-to-ask-about-fatiue","posts_count":8,"reply_count":3,"highest_post_number":8,"image_url":null,"created_at":"2026-03-01T10:53:54.778Z","last_posted_at":"2026-03-02T19:56:12.346Z","bumped":true,"bumped_at":"2026-03-02T19:56:12.346Z","archetype":"regular","unseen":false,"pinned":false,"unpinned":null,"excerpt":"I was shocked when the doctor told me.  Apparently I have had it since my first heart op 20 odd years ago.  They did all sorts of tests because my platelets were low.  But at the time I was told not cancer.  I was given &hellip;","visible":true,"closed":false,"archived":false,"bookmarked":null,"liked":null,"tags":[{"id":47,"name":"fatigue","slug":"fatigue"},{"id":252,"name":"myelofibrosis","slug":"myelofibrosis"}],"tags_descriptions":{},"views":98,"like_count":22,"has_summary":false,"last_poster_username":"Jonpd","category_id":5,"op_like_count":2,"pinned_globally":false,"featured_link":null,"has_accepted_answer":false,"posters":[{"extras":null,"description":"Original Poster","user_id":7893,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":7889,"primary_group_id":null,"flair_group_id":null},{"extras":null,"description":"Frequent Poster","user_id":6414,"primary_group_id":42,"flair_group_id":42},{"extras":null,"description":"Frequent Poster","user_id":3403,"primary_group_id":42,"flair_group_id":42},{"extras":"latest","description":"Most Recent Poster","user_id":3981,"primary_group_id":null,"flair_group_id":null}]}]}}