Benefits

Good Morning,

Quick question - Has anyone with ET successfully claimed PIP or applied for a Blue Badge.

Thank you :smiley:

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Hi @Mel1967 a great big welcome to our forum and a brilliant question that I cannot answer however I will copy your post to Blood Cancer UK for you @BloodCancerUK in case they can help and if you would like to speak to someone there the Blood Cancer UK support line is there for you.
I await others experiences.
I look forward to hearing more about you.
Look after yourself and please keep posting.

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I have Myelofibrosis and successfully applied for a blue badge recently. I have also applied for attendance allowance which I’ve been told I should get the higher rate. I emailed the support team at my local hospital and Macmillan Finance Services completed my claim, obtained a DS1500 and just rang me for personal information. I claimed under the special rules. They also sent medical information to support the blue badge application. The badge only took 8 days to come through. Hope this info helos.

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Hi @Mel1967 A really warm welcome to our forum and thank you for asking such an important question. I do hope you are doing okay?
Claiming PIP and indeed any welfare benefit can be really daunting & at times confusing so do know should you wish to talk anything through i would be more than happy to have a conversation with you about this.
Personal Independence Payment (PIP) can help with extra living costs if you have both:

  • a long-term physical or mental health condition or disability ( incl a blood cancer)
  • difficulty doing certain everyday tasks or getting around because of your condition

You can get PIP even if you’re working, have savings or are getting most other benefits.
To start the process you can apply online here- Personal Independence Payment (PIP): How to claim - GOV.UK (www.gov.uk). You can also contact your local citizens advice bureau who will be able to offer support in form filling and understanding of what is being asked.
Their website does offer online tips here for when completing the form- Check how to fill in your claim form - Citizens Advice.
It is also helpful, but not essential in completing your application that you send in any medical evidence that you may have which could confirm your current symptoms or indeed the impact in which cancer is having on your day to day life. This can be a supporting letter from your Haematology team, GP or indeed clinical nurse specialist.

Often the form filling can be daunting and very lengthy so filling it out in sections can help and do just get in touch should you need any support or wish to talk anything through- Blood cancer information and support by phone and email | Blood Cancer UK.

Best Wishes, Lauran

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I have ET but it hasn’t affected my mobility in any way perhaps speak to your Doctor if you are having problems I’m sure they will help with getting a blue badge

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Hi Mel1967
I have ET and I get PIP. PIP is based on scoring points in various areas, and can be difficult to get and you will need a supportive GP. My first port of call was citizens advice, I had a face to face appointment with a lovely lady who turned my chatting into the right words and phrases to us. Don’t forget the fatigue element it is important. My case was ok as I had surgery on my leg for clots, left it with lymphodema, also have motor and sensory neuropathy in both legs. So with the PIP I automatically get the Blue Badge. Good luck with your claim
Janet

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A great big welcome to our forum @Margaret01 and I hope you find it informative and supportive.
I look forward to hearing more about you.
Look after yourself

Hi Mel.I have polycaemia vera and Jak 2 i get high rate pip for care and moving around i have a few other conditions but certainly as soon as I said I had blood cancer they upped me from low to high you also entitled to blue badge with low or high good luck applying if you speak to local carer centre they will help fill in forms as they know how to word it

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Hi
I have Polycythaemia vera (PV), I found Age Concern most helpful after I failed in my first attempt to get Attendance Allowance. They asked me several questions then filled in the form for me. I now need to look into getting a care allowance. Marylin

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Pretty easy to do as long as your Carer doesn’t earn more than £233 ,a week unfortunately my husband is a bank worker so his wage differs weekly takes about 3 months to get your claim done but worth it as so many things your partner can claim on your behalf good luck

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