Yes that is probably so as my treatment was three years ago and things change all of the time so what you have been told will be correct, if you aren’t sure or need to go over her treatment plan again do ask her consultant or CNS, I assume she is checked on every day by members of her team?? I wasn’t on a trial as there wasn’t one available when I was diagnosed but most patients are on a trial, its usual with AML. I understand your concerns but try to be reassured that your wife’s medical team will be very experienced at treating this and will liaise with other teams about the best course of action if needed. For example when I had quite a major concern during my treatment and voiced it to my consultant he spoke to one of the top haematology professors in the country for a second opinion and to get the latest AML trial data to help me come to a decision.
Neutrophils are slow to recover so a rise no matter how small is good, some days they don’t move at all.
My diagnosis was very similar, unwell for a couple of weeks, had my bloods done purely as an afterthought by a nurse and later that night a phone call telling me to get to hospital immediately. All my blood counts were out of range and I had 90% bone marrow affected.
My daughter was a similar age to yours when I was diagnosed and we used to FaceTime which helped.
Being stuck in hospital for so long is soooo frustrating and I know exactly how your wife must be feeling! I was allowed, depending on my blood counts, to go for walks to the main hospital reception with family etc and that was a massive treat… I’d sit there with a hot drink and watch people coming and going! There was also an small outside area I was allowed to sometimes. I built up lovely relationships with the nurses and consultants, I used to joke whether or not I was allowed out to play then wait for my consultant to let me or not! Chatting to the HCA’s and cleaners helped pass the time, they were lovely and other patients, some I still keep in touch with. But then there are always the more difficult ones too who give you something to mumble about. My Mum and Dad would bring cross words when they came and we’d sit in my room (sometimes I had to be in isolation) doing them. Does your wife like box sets? I watched a lot, so did my husband while I was asleep!
The blue badge will be useful when your wife is recovering because she’ll probably be pretty exhausted after treatment and it means you will be able to park nearer the entrance so less distance for her to walk. I couldn’t walk far until I built myself up again.
You will be able to claim PIP as its not means tested, they don’t take into account earnings. We don’t qualify for any benefits either. I was award PIP (personal independence payment). Does your wife work?