CLL Watch and wait and tested positive for Covid

Hi there, unfortunately the worst has happened and my Dad who is nearly 77 and is on watch and wait for CLL has received a positive Covid test today. Obviously feeling very anxious and extremely worried. He has symptoms now for 5 days but I am very scared it could get worse. Has anyone on here been in the same situation who can talk me through it or provide advice - I would be most grateful. Thanks

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Hi @bethcarla, a great big welcome to you I am so glad you have found us, I cannot help you with your question but we are all here to support you and if you would like to speak to someone you can contact our Support Services Team on 0808 2080 888 (10am-7pm Monday-Friday, and 10am-1pm Saturday and Sunday) or via email at support@bloodcancer.org.uk.
I expect you are both feeling very anxious and extremely worried.
You say he has had symptoms for 5 days and what I would say is that he, or if he cannot you, contact his medical team, either his GP or hospital or ring 111 or if really critical 999. It is perhaps stressing his age, that he has blood cancer, CLL, and his symptoms. I always keep a diary of symptoms.
There is good information on the Blood Cancer UK and 111 websites.
But personally I would say if your father feels and gets worse it is worth ringing 111, or 999, and perhaps be persistent.
Take care and please let us know how you both are are and perhaps you need to isolate now as well.

Hi @bethcarla and welcome to the forum. I haven’t been in that situation, but oh my goodness, I can imagine how worried you must be. This is such a good place to share as well. How is your dad handling it all? The blood cancer uk support line may be a really good place for you to get advice. They are open tomorrow Between 10am and 1pm so may be worth giving them a call. Please let us know how you get on. Sending special wishes X

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hi @bethcarla im 48 and have had CML for 14 years so not quite the same as your dad but I had suspected covid which lasted for about 10 days back in March ( all the symptoms - temp of 38.1 , cough, tight chest, no sense of taste and smell plus fatigue , body aches and headache etc so my consultant said 99.9% sure it was it even though i wasn’t tested) .i was really lucky and recovered but still have issues with taste and smell. my father in law is 81 with dementia and also has CLL so we are very aware of how frightening it is. i would say get in contact with your dads medical team at the hospital rather than gp in my experience and if any issues with breathing just ring 999. 111 is ok for general advice but best to speak to the oncology team who knows your dads case in detail who can give you more tailored advice as the doc i spoke to at 111 gave very generic information. hope you dad is ok xx

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Hi @AdeB, welcome to our forum, it must have been pretty scary for you back in March and a very isolating place to be as less was known about Covid then. Thanks for your experiences.
I think this forum has been so vital to support each other through this year of Covid times. It sure has been a funny old year, my emotions have been all over the place.
I must be horrible still having issues with your taste and smell.
please keep letting us know how you are doing and if you would like to speak to someone you can contact our Support Services Team on 0808 2080 888 (10am-7pm Monday-Friday, and 10am-1pm Saturday and Sunday) or via email at support@bloodcancer.org.uk.

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Hi @bethcarla and welcome to the forum. It’s really great that you have shared your experiences. It will help others. You gave good advice on contacting your medical team as well, I think that’s so important! It’s such a stressful time isn’t it. I hope you are all taking care and managing to keep your spirit’s up :blush:

@bethcarla a warm welcome to the forum. I’m so sorry to hear you’re going through what sounds like an incredibly worrying time. How is your Dad doing? Have you managed to talk things through with his healthcare team? We have everything crossed that your Dad recovers quickly. As the others have said, our support line is here for you and your family if you want to talk anything through.

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Hi all, thanks all for replying and your support. I’ve did actually speak to someone on your helpline on Friday, so appreciate the support and all your comments.
I sit here in a state of anxiety, constantly checking in on my Dad. To add to this, my Mum is most likely positive too (waiting for the results), but so far all she has had is cold symptoms and loss of taste. My brother, sister in law, niece and nephew all got tested positive and I am still waiting (now more than 48hrs) for my results, though I have no symptoms and I am hoping I am negative (as my boyfriend, who I have been staying at, has had two tests in the last week (he has them for work) and both have been negative, but strange things do happen).
Trying to stay positive, but I know this week will be critical. Thanks @AdeB it was good to hear your story and I’m glad you came through it and I hope you fully recover soon.
Please can I ask, if anyone else has any positive stories they can pass forward or any practical advice, I would really appreciate it.

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That must be very worrying for you. I hope that the outcome is good for you and do let us know how you get on.

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