The steady fall in hospitalisation rates for Covid is good news. From time to time we see figures showing that over 50% of those hospitalised are unvaccinated. So the NHS must be assessing sub categories of people hospitalised.
Anyone know whether there are figures for how many immunocompromised with 4 jabs and eligible for nMABs and antivirals are hospitalised? It would be a good indicator of whether the safety net underneath us working.
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I agree it would be well worth knowing, even how many are patients with a blood cancer- all these pieces of information help in assessing our realistic risks and concerns in coming weeks and months
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I agree it really would be worth knowing. My husband having his 4th vaccination next week but we haven’t a clue if he has any immunity so very difficult to assess any risks. Statistics of patients in hospital/on mechanical ventilators with blood cancer would be good but even numbers of immunocompromised would be helpful.
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@summer123
I agree, it would be good to see the numbers, and also those who had anti-virals, and the percentage that then went into hospital
I did a free antibody test, it doesn’t give the amount of antibodies, but it says whether you have any or not, you can sign up here
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Hi Heather, I agree that it would be good to know about hospitalisation rates and so I tried to sign up to the survey. When I got to the anti-coagulant section, I didn,t know that to put as I am taking 75mg aspirin. Does make me ineligible to join the survey?
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When I signed my Dad up I chose no to anticoagulants as I didn’t think aspirin counted but I could very well be wrong . 
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From Google - There are different types of blood thinners: Anticoagulants, such as heparin or warfarin (also called Coumadin), slow down your body’s process of making clots. Antiplatelets , such as aspirin and clopidogrel, prevent blood cells called platelets from clumping together to form a clot.
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Thank you Anne-Marie,
I am taking aspirin because of my high platelet count due to MPN ET, so it looks as though the aspirin should be acceptable. Thank you for taking the trouble to look it. I hope that your Dad is ok.
Very best wishes to you both.
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@KateS
75mg asprin does not count as an anti-coagulant, so click “no”, they are looking for serious stuff like warfarin, which might mean, if you prick your finger, the blood won’t stop!
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Many thanks Heather. I will fill the form in now.
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I didnt mention that i take clopidogrel when i signed up. I think it means things like warfirin in case you cant stop the bleeding when you prick your finger to get the blood. No problem for me. I had trouble getting enough to fill the phial.
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Adrian had an article that showed stats that said 1 in 100 of deaths were blood cancer patients in last 3 months of 2021…which wasn’t very reassuring
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I read in the Observer that 1 in 20 patients that died
October to December 2021 had blood cancer. Is that correct? It seems extremely high.
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Hi
I tried to register for this today. It would have been useful to have had my specialist bring this to my attention however they seem to prefer not to have anything to do with covid advice. I got transferred onto the gov website and then a statement “we will decide if you are a priority”. Is this the sort of response to expect ?
Many thanks for highlighting this test, I have been keen to get at least some firm information on my status post vaccination and post covid.
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Thanks very much for creating this thread, it’s so understandable you have questions around this. At this moment in time, there isn’t any comprehensive data around this yet. The Intensive Care National Audit and Research Centre looked at 201 people who had been admitted to intensive care with Covid 19, which showed that 3.5% of these people had blood cancer. This is a higher percentage than it was under Delta, however the dataset is so small that we can’t draw any confident conclusions, especially since we also don’t know anything about these people, in terms of important factors such as vaccine status.
We understand that there are conversations ongoing in the Department of Health looking at the effective use of antivirals and nMAB treatments across our community. We hope this will provide useful information about the role these treatments are playing in reduced hospitalisation and mortality rates. We are not aware of a timeline at this stage, but will continue to monitor progress on this work.
Anecdotally, we’re hearing regular reports from people with blood cancer on our support line and via the survey we put out recently who have had recovered well after receiving the new covid treatments (explained here Antibody and antiviral treatments for people with blood cancer | Blood Cancer UK), which we are really pleased to see. However, we will continue to work with the government and NHS to ensure the process around accessing assessments and treatments continues to improve so it is as efficient as possible for the blood cancer community.
The research we’re funding within the Vaccine Research Collaborative will in time provide data about vaccine efficacy for people with different types of blood cancer, after the 3rd and 4th doses of the vaccine, and as we learn more about this we will continue to share and update the community on our webpage here - Covid vaccine efficacy and blood cancer | Blood Cancer UK.
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@KBull
I think I had something like this, it was another day before I had the text to say I was accepted, with a code to put into the system to order
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Hi @Trevor a great big welcome to our forum and thanks for raising the concerning statistics in the Observer newspaper.
Others have added to the debate but as I hope you feel this is a supportive forum and we and the Blood Cancer UK support line are here for you.
I look forward to hearing more about you, look after yourself and please keep posting.
Alice,
Very many thanks; good to get an update on where we are with research.
Regards
David
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This is so annoying! It is called National COVID Cancer Survey but it’s only available to people in England.
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Hi @Pamelala a great big welcome to our forum and it is so confusing when different things and restrictions apply in different parts of the United Kingdom, it does not feel very United.
How are you and I look forward to hearing more about you.
Look after yourself.
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