Thank you @Byrnebaby for telling us about this - very important. Thinking of you. Willow x
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That’s brilliant @Byrnebaby - may consider getting a landline again after all! Xx
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@Ceri_BloodCancerUK please would you be able to post @byrnebaby ‘s useful advice to an appropriate category and pin it, to make it more visible to others not in this thread? I had a look but couldn’t decide where it should sit and of course you have pinning power! Xx
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I’m ok thanks lovely @2DB daren’t drive though am just a bit ‘off it’!
Going to give myself a lazy day. Film recommendations gratefully received xx
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Not lazy spangles today is a rest day and being kind to yourself
None of us are lazy 
(I got told off from my brother when using lazy)
What sort of films do you like
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You’re right it is negative self talk and I hadn’t checked myself on it - thanks for picking it up, a rest day is what it is 
I like all sorts apart from any movie where a dog dies or anything overly romantic/slushy. 4 Weddings - great, The Notebook , no thank you 
xx
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I got my eye on you blame the steroids 
spangles @Spangleystar
Flight risk on Disney
Jason Statham Shelter is good but a dog does die in that
Jack Ryan ghostware prime
Series
Reacher
Tracker
Apple TV
Servant
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Hello @Byrnebaby, just a quick message to say thank you for that info about landlines - I brought it to the team meeting this morning, and it was deemed important enough to be taken to our campaigns and comms steering group!
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If you’ve got prime 
a series called Dead Loch is fab! You got this sweetheart xx @Spangleystar
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Oh wow!! Thanks for moving forward with it Ceri, I’m trying to get as much info together as possible, what with the governments Be Prepared campaign x @Ceri_BloodCancerUK
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There she goes the amazing @Byrnebaby putting her unrivalled research skills to the power of good. Not all heroes wear capes babygirl. KUDOS 
xxx
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Oh ! love you x I have good days, I have bad days, the same as anyone not in our ‘club’ and I try and turn it around,
this time yesterday I was ugly crying because I thought I’d found a lump brought in by my Lichen Sclerosus, poor K was in a state of panic, and I was worried that treatment would be delayed etc, got an appointment this morning with ANP and she’s said it’s a cyst as it’s there one minute gone the next ? ( a bit like me ) so on we go 
and got a message iff my cousin this morning, my 90 year old uncle died 
dads brother, last of 10 , they always had a bet on who would go last, Jim or dad, but the both had a great life x 90 & 86 can’t be bad xx
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Oh lovely it’s all going on again, all at once! No wonder you’re erupting bless you and you’re still finding time to help the blood cancer community. You are amazing my lovely 
xx
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Ohh you are amazing and a lovely friend xxx on the viewing discussion A Woman Of Substance is a really good watch, Five Star weekend, Scarpetta, and currently watching Big Little Lies @Spangleystar
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love love love Big Little Lies! That is so good, I feel like I’ve been waiting years for season 3! Thanks for the other recommendations xx
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I’m on the last episode of series 1, so shhhh!! 
Nicole Kidman in Scarpetta, pretty good x @Spangleystar xxx
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Already done @2DB worked wonders a few weeks ago as the water was being shut off here, and I got 10 litres delivered, I rung to explain the situation, that after it was back on I would still need clean water for a few , even to brush teeth, as couldn’t trust the boiled water, and they delivered 60 litres! So I’m adding to that now, and just bought packets of large body wipes, so in the event of apocalypse at least I’ll be clean and hydrated! x
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Thanks @Willow no problem x hope you are keeping well x
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I pay £3 a month for the landline that’s without calls, the full fibre costs £42 though! 
I just heard from my neighbour (who also has myeloma) they are on EE and made an enquiry. They are being sent a back up battery pack, although won’t mark anyone as vulnerable unless you are the named account holder (in this case it’s her husband). @Ceri_BloodCancerUK @Byrnebaby xx
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