Hello Linda
Thank you so much for your very helpful reply. Yes I think I will be on similar medication..fixed and combination oral and maybe infusion. I always find can cope if know what to expect. I think my biggest concern at moment is side effects, did you have problems? Of course I know we all react differently.x
Heather Amos
@Yoshi29 hi Heather. I was just on the ibrutinib for the first 3 cycles and I felt amazing . We then introduced venetoclax, this one wiped me out. Nausea but not actually being sick, then just really really tired. I had to reduce my work hours at this point . But gradually the symptoms have lessened and now I’m working full time and considering starting jogging again. Mentally I have found it challenging, as by trying to avoid bugs I have felt quite isolated. It’s like you’re in lockdown but nobody else is. Saying all this, I feel very lucky , my symptoms and gripes are tiny in comparison to others , it’s just a long slog! I’m counting down the days to a massive glass of wine in a pub with lots of friends 
. I hope it all goes really smoothly for you.
Linda
Many thanks Linda, appreciate it
Hello there @Yoshi29, welcome to the forum and apologies for not greeting you sooner. I’m glad to read you’re taking your diagnosis (with Chronic lymphocytic leukaemia ('CLL')?) in your stride, but please know the forum is here for you however it’s going.
I see that you’ll be starting treatment later this year and perhaps you’d like to read the Blood Cancer UK information about Chronic lymphocytic leukaemia ('CLL') and its treatments: Chronic lymphocytic leukaemia (CLL) | Blood Cancer UK
Further Chronic lymphocytic leukaemia ('CLL') information from Leukaemia Care: Chronic lymphocytic leukaemia (CLL) - Leukaemia Care
If you’d like to find other threads relating to Chronic lymphocytic leukaemia ('CLL') around the forum then do have a look via the search box at the top using relevant terms.
I note your kind posts to @Lindabee. There’s this great thread full of fellow forum members living with Chronic lymphocytic leukaemia ('CLL') which may be of interest: Newly diagnosed CLL
The lovely Blood Cancer UK specialist nurses are at the end of the phone so do give them a call with any medical queries or about further resources on 0808 2080 888.
Hope that helps a little @Yoshi29, do please keep us posted about how you get on.
Thank you, I appreciate the support , I feel at moment best not to over think or over worry I start and know which treatment I will be on. I will keep you posted.
Heather
Heather Amos