Hi everyone,
I was diagnosed with Monoclonal gammopathy of unknown significance ('MGUS') 3 years ago. I’m exhausted, and since then also been diagnosed with Arthritis in a few joints too. I already have Hypothyroidism and Vitiligo, which I know are autoimmune conditions. How is everyone else feeling ?
Hello there @Kimberley, welcome to the forum. I’m glad you found us here and thank you for your friendly introductions, I’ve seen your other posts. May I say I’m sorry to read of your diagnosis with Monoclonal gammopathy of unknown significance ('MGUS') before, and that exhaustion now. Fatigue is very fatiguing, I find!
I’m sure a few years on since diagnosis you know lots about Monoclonal gammopathy of unknown significance ('MGUS') but I’ll just share the Blood Cancer UK information here where you’ll find many links to further information that may be of interest: MGUS (monoclonal gammopathy of undetermined significance) | Blood Cancer UK
Personally, although I live with a different diagnosis to yours, fatigue has definitely been a difficult side effect of my treatment and initially was pretty disabling. It caused brain fog too which was hard to deal with as I couldn’t think clearly when I needed to understand my diagnosis and treatment. Thankfully that faded.
From my non-medical point of view, I would not be surprised if living with Monoclonal gammopathy of unknown significance ('MGUS'), let alone more than one chronic illness at once can affect our energy levels. I read that something like 80 % of us will experience cancer-related fatigue (CRF). I know that’s the case for me with the Polycythaemia vera ('PV') I live with. Here’s some Blood Cancer UK information about the fatigue of blood disorders: Fatigue | Blood Cancer UK
Have you passed by your specialists the exhaustion? Always a good idea to let them know if we develop new or changing symptoms. Another thing you might like is to call the lovely Blood Cancer UK specialist nurses free on 0808 2080 888 with any medical queries.
And if you’d like to look for specific things around the forum just type it into the search box at the top. Here’s a thread full of other forum members talking about their experiences of Monoclonal gammopathy of unknown significance ('MGUS') and fatigue which may be of interest: MGUS and fatigue
Hope that helps a little @Kimberley, do keep us posted about how you get on.