Thank you i am sure i will look back when things have moved on a pace and realise that this was just part of the process we needed to go through x
Oh Debbie, I don’t have any solutions but can remember when my husband first came out of hospital I have never felt so alone and so out of my depth. I was actually quite scared to have him home as he was still so unwell. We had a revolving door to the hospital for a good few months and at every crisis I never knew if I was doing the right thing……I just muddled on and somehow gradually things got a bit better . Sending love and strength that things will get better for you both day by day ….xx
Thank you Catpat
Its reassuring to hear your experience and how time made a difference.
Just over a week since OH came home from hospital. Numbers continue to improve and had a good visit to clinic yesterday.
OH has had a pep talk from the consultant which has provided him with reassurance that all is ok and on track.
I got to have a chat with the specialist nurse to express how im feeling and she was really supportive.
He is drinking well, starting to eat better and mobilising around the house slowly when he can. Already better than 7 days ago.
Very early days and i still have days when im not sure how i can keep going.
Had some sad news today that a long time family friend has lost his battle with cancer. We last saw him on the ward when OH was last an inpatient before his admission to Oxford. Ive not told him yet i feel i need to time it carefully.
Hope everyone is doing ok. Debbie x
It sounds as if you did have a good visit with the clinic yesterday @Debbie36
I am so glad that you had a supportive chat with the specialist nurse.
Your OH’s pep talk seems to be positive too.
Perhaps it is just baby steps and sometimes a topple backwards.
I am more concerned about you as he has you to look after him and you are doing an amazing job and juggling act, but as you say how long can you keep going.
Have you got any help that can help you, I know it is difficult for a ‘carer’ to ask for and accept help?
On this forum we really appreciate your juggling act, nobody asks how the carer is.
I am so sorry to hear that a long term friend of yours lost his battle with cancer. I find that deaths, especially cancer ones, really hit me now.
Be kind to yourselves and celebrate the little wins
Full of admiration @Debbie36 . You sound like Superwoman to me, though I know you probably don’t feel like it. So good to hear that things are slowly moving in the right direction. I know from experience that when months of treatment and tests are on the horizon, it’s very difficult to think about a time when things might be better and that the burden can be a bit overwhelming. I don’t need to tell you to look after yourself and I know from your posts on here that you are always going to put your OH first. He’s very lucky to have you and I hope things continue to get better.
You are very kind Franko i am trying my best but some days i just want to pull the duvet over my head and wish it all away.
OH numbers continue to improve. His appetite is getting better and his picc line is due to be removed next week at his appointment.
We are now over half way to day +100.
Summer123 news was really sad as we are just a few months behind her journey and my heart goes out to her and her family. X