I think I may have Leukemia due to to much radiation

Hello everyone, I am in a terrible state at the moment.

I have posted before but thought I would some more detail as things have moved forward a bit after my last blood test/

I won’t go into details about my symptoms but I have reason to believe I may have Leukaemia, due to some odd blood readings.
I have had a very high ferritin reading since February and although my main red and white blood cells appear normal, the haematologist has noticed that my Basophil count is at .15 ( high is . ) and my monocyte is at .85 and high is 8, he has asked that the blood test be done using a’ blood’ film where the blood is examined by a human, rather than the ‘auto’ system where a machine is used.
As I said I do have other symptoms but wont bore anyone with those, anyone have any experience of blood results as above? I now high basophils can signal Leukaemia on reading about it but not sure what is classified as high, .15 doesn’t sound a lot but in theory that 50% higher than the normal high reference point
As for the title of this post I truly believe that due to have a number of big CT scans has put me into a position which could have given me Leukaemia. Hence the question.

Thanks Al

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Hi @Red1, it sounds as if you are in a terrible state at the moment, and if anything like me the fears, thoughts and feeling are whizzing around in your head. It sounds a very scary place. I cannot answer your health diagnosis questions but we are all here to support you and you can contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday and 10am to 1pm Saturday and Sunday or via email at support@bloodcancer.org.uk. What helped me was to write down all my questions for my medical appointments and make sure I also ask those follow up questions. Have you got any support, sometimes I find taking someone with me to appointments helps? When is you next appointment?

@Red1 I am so sorry you’re in such a terrible state - I can only imagine how worrying this must all be for you. When is your next appointment with the haematologist? Have you talked through these worries with the clinician?

In case it’s helpful for you, here is a page from our website which talks through the general range of blood cell counts for healthy people - Blood Cell Counts
There is also some general information from our website about the different sorts of tests used to diagnose leukaemia - https://bloodcancer.org.uk/understanding-blood-cancer/leukaemia/tests-diagnose-leukaemia/.

Please do give us a call if you want to talk any of this through. We are here to support you in any way that we can.

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@Red1 may I ask how you’re doing?

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Thanks for asking I am not doing very well. It’s a bit of a long story, but my blood results are in general within normal limits, slightly high on Basophils very high on ferritin. My Gp is reluctant to progress based on those results , I contacted a haematologist privately he has asked fir a Blood Film test, our local NHS won’t do that with my blood results being what they are. So I went to a private GP, got the test done but then it gets sent to a central lab, unfortunately I did it Friday and for whatever reason it didn’t get processed within the required 24 hours lead time required before the blood is not deemed viable to do the film tests. So now I have to wait til Wednesday do get another go, this time we will prime the lab to expect it and mark it urgent so getting the results Thursday. I am beside myself with worry if you want to know the truth.

Alan

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Oh Alan, I am not surprised you are feeling beside yourself with worry, shock and waiting are horrible places to be and everything seems to move so slowly.
I was diagnosed with a Leukaemia in 2003 and those feelings are so similar to mine at the time. I felt I would be diagnosed and immediately be offered a treatment regime. However I was put on what is called ‘watch and wait’ or ‘active monitoring’ and ever since I have had regular blood tests which sometimes fluctuate. I feel a very lucky girl. It does mean I have learnt to live with the symptoms I was diagnosed with. My diagnosis has given me the opportunity to look at myself and really get to know how I tick and that helps me manage my symptoms. This is just my experience. Take care and please let us know how you get on so we can support you.

I am so sorry to hear that you’re feeling like this @Red1, though it’s totally understandable. i can only imagine how tough it is for you during this uncertain time. Alan, would it be helpful at all if one of our support team gave you a call to chat things through? If it would be of any support to you, please feel free to private message me (just click on my name and then the little envelope) and let me know when would be best for you/best number for us to call. Or you can contact us free on 0808 2080 888.
Did the private haematologist or GP talk to you about what they’d be looking for or looking to rule out, in the blood film test?

We are all here for you Alan. Take care, Alice

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Thanks Erica, do you mind telling me your symptoms you are living with.

Al

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Hi Alan, my symptoms are well the big one is fatigue which I now realise is brought on by what personally stresses me emotionally and physically. I also do not deal with what personally stresses me well and that also brings on my fatigue. My fatigue can come on immediately or up to 48 hrs after I have overdone it. I sometimes need to have a nap, a duvet dive or some fresh air and appropriate exercise. I am also prone to different infections, my inner thermostat is useless, I had weight loss. I hate being out of control !!!