Hi I have been diagnosed with myeloma I’m 51 years old. Started Dara VT treatment a week ago. Anyone doing the same treatment. Feeling lost
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Hi @Rosie2 and welcome to the forum.
I’m sorry to hear about your diagnosis. The feeling of being lost is to be expected.
Most of us probably felt in a similar position when we first got diagnosis.
My diagnosis was a different Myeloproliferative neoplasms ('MPN') called Myelofibrosis so my treatment wasn’t the same as yours.
There will be many others on the forum who will have a similar diagnosis and will share experiences with you.
The @BloodCancerUK-SupportTeam is a great resource and you can reach out to them for advice and support.
Hope that helps.
Take care
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Hello there @Rosie2, welcome to the forum at what must be a worrying time. I’m so sorry to read of your diagnosis, feeling lost sounds about right after a shock like this like @DuncanB wisely says. I hope you’re being easy on yourself, and hopefully the forum can help.
I’ll share the great Blood Cancer UK information about myeloma here for when you want to read more. There are lots of links to further information, including typical treatments: Myeloma | Blood Cancer UK
If you’d like to reach out to other forum members with experiences of myeloma you can use the search box at the top or Related Topics below using relevant terms. You are not alone in having that diagnosis and I know of many lovely forum members who I’m sure would share how it is for them, I wonder dear @2DB if you’d mind me drawing attention to your wisdom here? No worries if not, of course.
Here is one recent thread where forum members discuss myeloma, perhaps look for more threads: Myeloma - anyone else with triple hit/high risk
Maybe you’d like to have a look at Myeloma UK who specifically offer information about myeloma: https://www.myeloma.org.uk
Finally, Blood Cancer UK have really lovely specialist nurses just at the end of the phone if you’d like to talk things over with them. They’re experts in all this and can answer medical questions and point you towards other resources. Their free number is 0808 2080 888.
Hope that helps a little @Rosie2, do please have a look around the forum and please keep us updated.
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Hi @Rosie2
I was diagnosed 9 years at 49
It was a bit of a whirlwind for me at the beginning.
I can understand you feeling lost it’s a lot to take in. Take each day as it comes for now
Write down any questions you have.
We cant give medical advice but will try and help with any concerns that you have
I have had data/velcade/dex which has been quite easy to tolerate
I dd have the Velcade and dex reduced around cycle 4
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Hi @Rosie2, and welcome to the Forum.
It’s lovely to see the responses you’ve had, and especially that @2DB has been able to share their experience of the same treatment. I believe perhaps @MumOfTwoBoys, @Tash, and @Pmg might also be able to share some similar perspectives/experiences (if you feel able to - no pressure at all).
As mentioned, as you find your feet with treatment our nurses are there if any clinical questions come up. You can reach the Support Line at support@bloodcancer.org.uk or on 0808 2080 888 (option 1).
Keep posting whenever you need to.
Take care,
Ceri - Blood Cancer UK Support Services
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I’m 68 and have the same diagnosis. And I believe the same treatment. It is injected into my tummy. At the moment my cancer is in remission. There was a bit about our cancer in the Guardian last Sunday.
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