As treatment options can be very complicated and difficult to manage, people’s reactions to these can vary significantly. If you have any questions, concerns or stories that you wish to share then this is a space to have conversations with people who may have experienced something similar.
Hello, can you advise how I can get the most recent version of the book blood and bone marrow transplantation, the seven steps?
My brother is getting his transplant in September and the book the hospital gave him is from 2012.
All help and advice is much appreciated
Thank you for getting in touch with us. I have included a PDF document of the seven steps here: Blood stem cell and bone marrow transplants: The seven steps. You can also contact our support services who can mail you the booklet at email@example.com for your request. Feel free to let me know if you have any further questions.
Hi @Jinnett78. I had my stem cells harvested and transplanted for aggressive, relapsing Hodgkins Lymphoma in 2008/2009. I hope all goes well for your brother and he is lucky that he has someone looking out for him. I hope the information booklet is a help
Yours relapsed? My brothers has relapsed and is not only in his blood now but affecting his CNS also. They gave him 3 options about 2 weeks ago now, one was do nothing and maybe get two weeks, two was get palative chemo and possible get 4 weeks and the last option was to get the pretransplant chemo and transplant but there was not much hope it would work. I know each case of leukemia is different.
They were trying for a week to find where the leukemia was in his cns but he was in the 1/3 where they know it’s there but can’t find it and because the damage to his nerves was getting worse every couple of days he decided to go with the palative chemo.
He now only have days left unfortunately.
Were you also offered similar options when yours relapsed?
Hi Janet I had lymphoma rather than leukaemia, (rather a complicated case) which was chemo sensitive, which meant while I was having chemo the lymphoma retreated, but came back as soon as chemo stopped. As you have found out, as well as taking many forms blood cancers are as individual as each person affected.
In the Midlands the haematologists in the different hospitals liase with each other, and they could see I perhaps had 30% chance of surviving first year after transplant. My words were that as it was between death or that I had to take that chance.
I am so sorry that your brother’s story is not going to have a better outcome, and hope that his last days are peaceful.
My best wishes to you all at this time