Oh, you must go to the Cotswolds next year, it’s so restful with so many lovely towns, villages and lots of book shops. Has anyone else been there or can you suggest anywhere else we can send Josh for a well earned break?
If you can bear a 4 hour ferry trip we went to the Isle of Man this year (although you can also fly, but its not an option for me) I also love the Lake District, Yorkshire, Wales and Northumberland. Down South Somerset and Dorset have beautiful beaches, and I also love Norfolk.
We have been on rail holidays, and you can get to Bruges, Avignon, and Paris on Eurostar. Much less stress than flying, and check-in only 45mins before departure!
I am booked up to go on a Mediterranean cruise next year with my two friends for one of my friends 60th birthday . I have just about paid my cruise up and I have also taken out the travel insurance the travel company advised me too but this was before I was diagnosed with ET which I have only been diagnosed with on Tuesday . Does anyone know if this will affect my insurance policy now and should I make the travel company aware of my diagnosis incase I have to change my insurance policy
A Mediterranean cruise sounds wonderful to me and time with good friends is priceless. I cannot tell you what you should do, but I think if I didn’t tell my insurance company the policy would probably be invalidated if I had to make a claim. Usually it is in the small print but I just like peace of mind, not something niggling me. If you do notify the insurance company please let us know how you get on.
Thanks Erica, Yes I am going to speak to the travel agency how I took out my insurance policy with and let them know of my health change just in case as you say it makes my policy invalid, I wouldn’t want to go with the worry if anything did happen that I had no insurance in place . I will let you know how I get on when I have spoken to them
Always a worry booking holidays and insurance. My gripe is that often those arranging insurance have no medical knowledge and trying to explain that problems I have are caused by side effects of problems from treatment of blood cancer can be frustrating. One person was going to put that I had heart cancer!
My goodness that sounds horrendous them claiming it as heart cancer . I will have a look at the link thank you, there is so much I need to look into now with this diagnosis it’s a nightmare
I hope you do not mind but I have just welcomed another lady @justme who was diagnosed with ET in May and i have given her your link.
Hi picses56. No I don’t mind at all
I was in Scotland this summer, my first visit. What a beautiful country! I live in Somerset, where the temperature today is letting me know winter is knocking on the door!
I was diagnosed with ET last May. My platelets are in the high 500s at the moment. It came as a huge shock to hear the word cancer when I received my news at the Macmillan unit of my local hospital, I’m JAK2 positive. It took quite a while to process, and if I’m honest, I think I still am coming to terms with the news. I expect you might be feeling the same. I found talking to others who have ET a great help and reassurance, which makes this forum really helpful, as I understand MPNs aren’t very common.
My Haematologist is very helpful, I’ve found writing my questions down helps me, so I don’t forget to ask them!
I hope you’re getting good support too. I’ve found taking each day as it comes works for me. I’ve honed my diet to be healthier than it was, I love chocolates and cakes! I’ve not cut them out completely, but have them far less often. That and gentle exercise have helped me lose 3 stone in weight - I’m still working in imperial not sure what that is in kilos!
It’s good to meet you, if you’ve any questions, do ask.
Hi Rosalind, I’m in a similar situation yourself I was only diagnosed on 13th of this month and like you it was a complete shock to my system even tho I had a feeling I was going to be told this was what it was as my doctor pre warned me. My platelets are at 597 just now, they were 503 in June so they have risen slightly and I’m jak2 positive. I have been invited to go to the maggie’s centre near me to a meeting run by McMillan nurses to meet other people in the same position as me so I’m looking forward to that as I’m feeling quite alone at the minute even tho my hubby and family have been great and very supportive. You sound like your doing all the right things health wise . I do need to lose a bit of weight and start eating more healthier but at the moment I’m so tired that I can’t think about that yet . Good luck with everything you are going through and I hope you stay as well as you can be
Hi Louise, just to let you know Blood Cancer Connect will no longer exist very soon, and its no longer being updated.
Thank you for updating me Dawn
Hi. I don’t know whether you have seen the post below from Dawn, who is a member of Bloodwise staff, but apparently the link I gave you is going to be discontinued. I hope you manage to get sorted out, and I am pleased that you have managed to link up with someone who knows more about ET than I do.
Thank you so much for sharing your planned cruise with us. You spoke briefly about taking out travel insurance before you were diagnosed. Have you spoken to the travel agency about altering your insurance?
Hi, has anyone got any good experiences with decent holiday travel insurers. I’m getting very expensive quotes a year into remission from AML.
Hi Phil. If you go to the section living with and beyond cancer there are quite a few posts re holiday insurance. I hope that helps. Good luck
Thanks, I will give that a go. Getting charged a fortune for health issues that cropped up as s result of the dreaded AML but have since long gone.
Hi Phil, I’m 38 and an Adult ALL survivor (remission since 2016). I used this company to book a couple of holidays this year - https://www.premiercover.com/ and they were pretty reasonable. I think I found it through a Macmillan online guide or Maggie’s
Lots of luck, Emma
Hi that’s fab thanks, I will give them a try tomorrow.