Hello @Hope2026
Thank you for your post. We are so sorry to hear about your grandmother and her potential diagnosis of myeloma. We can imagine this must be a very worrying and difficult time for you and your family.
Do keep posting on our forum and keeping in touch with the team during this time. You can also speak to our nurses on 0808 2080 888 or support@bloodcancer.org.uk
Myeloma can sometimes cause symptoms such as severe back or bone pain so it’s understandable that the hospital is investigating this possibility. They will usually carry out scans, x-rays, blood and sometimes urine tests to determine this as it is not usually diagnosed from one test alone.
At the moment, it sounds as though the doctors are still carrying out tests and may not yet have a confirmed diagnosis. They will usually want to understand what is causing her symptoms before discussing treatment plans.
In terms of going home, given the significant changes you’ve described, including severe pain, confusion, reduced eating and no longer being able to prepare meals for herself, the hospital is unlikely to discharge her until they feel it is safe. Before discharge, they would normally assess what support she needs and whether additional help at home, community nursing support, carers, equipment, rehabilitation or alternative care arrangements might be required. They may complete physio or occupational therapist referrals to help assess what her abilities and to ensure her home is safe for her to return to.
As every person’s situation is different, it is difficult to predict exactly what will happen next. The hospital team looking after her will be in the best position to advise once they have the results of all her tests and have assessed her overall health and care needs.
For now, don’t be afraid to ask the ward team questions about:
- Whether myeloma has been confirmed – if so she should be referred to a haematology team.
- What tests are being carried out.
- Does she need any pain relief/ has she been prescribed this.
- Whether a discharge planning assessment has started.
- What support would be available upon discharge and support for the family.
Take care & warm wishes,
Emma (support services nurse)