A 36-year-old Mum diagnosed with high risk MDS

Hi @Lucca, of course. I’ve pulled a few things together below that I hope might be useful.

The Osborne Trust is a charity specifically set up to support the children of parents going through cancer treatment (their founder was diagnosed at 36, with two young children). They offer advice for parents and support for children aged 0 up to 18. There’s also the Fruitfly Collective, which has resources around support for pre-school aged children and also for parents.

For your own peer support, particularly connecting with others who’ve been through high-risk Myelodysplastic syndrome and the path to transplant, the MDS UK Patient Support Group is worth knowing about. They have online support meetings and a helpline on 020 7733 7558.

There’s a thread on our forum: The effect on children of a blood cancer diagnosis within family or friends, where others have shared their experiences, if that feels useful - though the children talked about there are older than your little one. You can also use the ‘Related’ feature below at the bottom of the thread to find suggested similar topics, as well as rthe Forum search function.

Take care and please do let us know how you’re getting on. You’ll find this is a very supportive space with a great community.

Ceri

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