Hi @Bonny16 , you are absolutely not moaning. Family support is wonderful but you’re right that unless someone has been through this, it’s very hard for them to truly understand what living with blood cancer and its treatment feels like day to day.
I did want to mention the recurring fevers specifically, even though they’re mild and seem to settle, it’s really worth letting your team know about the pattern you’re describing so they can keep an eye on it, if you haven’t already. I’m going to tag in our Blood Cancer UK nurses too, as they may be able to offer some further advice on what you’re experiencing; @BloodCancerUK_Nurses.
In the meantime, I think you’ll find real comfort in knowing others on here have been in very similar situations. There are a few threads that might resonate with you, one specifically about Azacitidine side effects from other Chronic myelomonocytic leukaemia ('CMML') members, and our CMML information page if you haven’t already come across it.
Our Support Line is also there whenever you need it, and sometimes talking it through with someone who understands blood cancer helps. You can reach them on 0808 2080 888 or support@bloodcancer.org.uk.
Take care,
Ceri - Blood Cancer UK Support Services