Ah I totally hear you about feeling helpless and the uncertainty. It’s so difficult. I wish too that we could make it better and also lessen the worry but somehow we all have to go through it. It really does make a difference knowing we are not alone, but it is still v hard.
it sounds like your mum is doing well how is she feeling? Does she feel unwell or tired?
Dad’s chemo is postponed until Monday now as his infection marker wasn’t quite low enough. It is heading the right way tho. Which is fine, but it is a worry that something will happen before Monday and it won’t start again.
I did call, and ultimately the request for extra help at home would need to come from my parents instead of me and my sister and they don’t want that currently so it’s tricky.
Keeping my fingers crossed that your dad’s chemo will start on Monday and that he stays infection free until then. If he only has the NPM1 mutation then it should respond really well to the chemo.
My mum is tired but getting a little more energy each day. We went to get bloods tested today and her neutrophils and platelets have plummeted but they said that this is what they would expect to happen at this point and they will start to rebuild themselves soon. She has a bone marrow biopsy on Monday to see how it is responding thus far.
Ah, it is so difficult when people don’t want to ask for help. I know it is mostly a matter of pride. Hopefully your Mum might change her mind in the future, caregiving is a tough job.
Hey, sorry for the delay. How did your mum get on when they tested her blood? Did they give her some platelets? Pleased to hear she is getting more energy each day. And I hope the bone marrow biopsy goes ok tomorrow. Will be thinking of you.
Dad has remained ok thankfully, he does have an ulcer but they don’t seem to be too upset about it atm and tomorrow should go ahead. He had blood and platelets Friday and will do again on Tuesday. But his inflammation was before 100 so they said all fine for tomorrow. Fingers crossed!
He has been a bit more mobile etc so it’s been slightly easier re caregiving so that is something.
How are you feeling? How many weeks pregnant are you now? Hope you are feeling ok!
Hope you all have a good week. Will catch up soon xx
Ah that’s amazing! So glad it is still on track for tomorrow and that the hospital actually does it on bank holidays. They can’t do the injections on bank holidays or weekends where we are but they can do the tablets every day. Pretty bizarre!
She didn’t need more blood products in the end. She has to go to hospital to get blood tested three times a week at the moment, on Friday her neutrophils/white blood cell had tanked and platelets v low at 20 (they don’t transfuse unless they are below 10) - the Dr said the drop in blood levels is what they would expect to see at this stage of chemo and they should start to rebuild soon. As her platelets are always low she does get a lot of bruising and petechiae. She is neutropenic so obviously has to be very careful not to catch anything, I think the hardest thing for her is not seeing grandchildren.
I am 25 weeks now, and am really starting to feel pregnant now, I am getting out of breath easily and struggling to keep up with the toddler!
Keeping my fingers crossed that your Dad starts treatment tomorrow. So glad to hear he is a bit more mobile!
how is she feeling? Does she feel unwell or tired?