Hairy Cell Leukaemia

Hello there @Dave21, welcome to the forum. I’m sorry to read of your Hairy cell leukaemia ('HCL') diagnosis and related concerns. I am glad that treatment already finished a while ago though.

While I live with Polycythaemia vera ('PV') rather than Hairy cell leukaemia ('HCL'), I appreciate that even having blood testing can be a worrying reminder of other aspects of all this. I’ll add the Blood Cancer UK information about Hairy cell leukaemia ('HCL') here for reference.

We forum members can’t offer medical advice, especially as our test results are so unique to each of us, but I’ll draw attention to your queries to the lovely @BloodCancerUK_Nurses as they can answer them and offer specialist support. You can also call them free on 0808 2080 888 should you prefer.

Another way to perhaps compare your situation is to see what others living with Hairy cell leukaemia ('HCL') have said around the forum. If you use the search box at the top or Related Topics at the bottom you’ll find other posts relating to your search. There’s also a couple of recent-ish threads full of lovely folks discussing Hairy cell leukaemia ('HCL') that may be of interest, here and here.

Hope that helps a little @Dave21, do please look around the forum as you’re not alone with that diagnosis and worry of relapse, and I’m sure others can offer advice.

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