Major Surgery with ET

Dear @Prudie - a huge welcome to our forum. I’m so glad that you’ve found us.

I’m very sorry to hear about your Essential thrombocythemia (ET) diagnosis and the knock-on effect this is having with other medical needs. It’s understandable that you feel in limbo as you wait for more information and a plan. It can be very overwhelming, but let me reassure that you are definitely not alone.

I have a different blood cancer, but hope that others in similar situations will share their experiences. Here is also a link to someone with Polycythaemia vera (Polycythaemia vera (PV)), another Myeloproliferative neoplasms (Myeloproliferative neoplasms (MPN)), who had a knee replacement that you might find helpful - Knee Replacement

You can also contact one of our wonderful nurses over the phone or via email on 0808 2080 888 or via support@bloodcancer.org.uk if it would be helpful to talk things through.

Take good care and do let us know how you get on. We are all here for you.

Maggie

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