Myleofibrosis diagnosis

Hello there @SCcoop, welcome to the forum. I’m sorry to read of your newer diagnosis of Myelofibrosis ("MF’) and that nausea. You’re not alone in living with those and I’m sure that the forum and its amazing specialist nurses can offer some great tips.

Although I bet your lived experiences have taught you well already, perhaps you’d like to read more about MF? Here’s the great Blood Cancer UK information, just tap on the red link: What is myelofibrosis? | Blood Cancer UK

While I live with Polycythaemia vera ('PV') rather than Essential thrombocythemia ('ET'), I’m sure you know that they and MF are types of Myeloproliferative neoplasms ('MPN'), often with similar and overlapping symptoms and treatments. Here’s more information about Myeloproliferative neoplasms ('MPN'): What are myeloproliferative neoplasms (MPN)? | Blood Cancer UK

Feeling nauseous is sadly not uncommon with the sorts of treatments we take and blood cancers we live with. I’ve read that ginger sweets (like the kind for seasickness) can help settle nauseousness, and personally I find peppermint tea, or even very minty chewing gum when out and about, helps with my own upset stomach. Let me see if there’s a thread or 2 around the forum about Myeloproliferative neoplasms ('MPN') and helping nausea, maybe these; Nauseous with ET and ET diagnosis finally sinking in

May I ask, as you lived with Essential thrombocythemia ('ET') for so long, if you have your own tips to share I’d love to hear. I’m sure others around the forum would too. I know there are others here who share (or have shared, like dear @DuncanB) your diagnosis of MF and transplants who will no doubt offer their wisdom.

If it would help to speak to one of the specialist nurses do give them a free call on 0808 2080 888.

Do please let us know how you get on @SCcoop and what you find helps.

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