Hi @AngelaB, thank you for taking the time to share what you’re going through. It sounds like an understandably difficult and stressful time for you. It’s awful being in pain all the time, and waiting for referrals is not easy. Just like Erica has said, if you’d like to talk this over or need a bit of support, please don’t hesitate to call our support line on 0808 2080 888. We can also talk you through where to get further support, if you like, as some people find counselling support (for example) helps them with difficult symptoms or feelings. You may wish to consider seeing the GP (or another GP?) for more support if your symptoms are not settling?
I also wondered whether this MGUS thread on the forum might be helpful for you at all- MGUS (monoclonal gammopathy of undetermined significance) - Recent diagnosis - Blood Cancer UK Forum. There are links to resources on MGUS there, too, in case that’s useful.
Please do let us know if we can do anything to support you, Angela, and please do take care of yourself.
Best wishes,
Tanya.