Hello again @BrianP, thanks so much for keeping us posted. I must say, I’m really so sorry to read that you ended up diagnosed with a JAK2 gene mutation and Myeloproliferative neoplasms ('MPN').
While I’m glad you’re relieved to know what you’ll be living with, it’s still a lot to get our heads around. I remember well being diagnosed very similarly to you in 2023.
If I may just share the Blood Cancer UK information about Myeloproliferative neoplasms ('MPN') where you can read further about Essential thrombocythemia ('ET') and Polycythaemia vera ('PV'): What are myeloproliferative neoplasms (MPN)? | Blood Cancer UK
Here’s some great BCUK information about the treatments we tend to have, including phlebotomy and hydroxyurea: Polycythaemia vera (PV) treatment | Blood Cancer UK
And perhaps you might like to read how others with Polycythaemia vera ('PV') get on in this long thread full of lovely survivors (full disclosure, I started this thread on my day of diagnosis): Now part of the polycythaemia vera posse
Please remember that you are most certainly not alone with that diagnosis and you will find many people here who will know what you’re going through. Please reach out to others around the forum using the search box at the top, and do feel free to ask whatever you need to know and share how you’re feeling. For many people it can feel like grief or loss. The forum is here to support you.
You can also call the lovely Blood Cancer UK specialist nurses who can answer medical queries and point you towards other resources. Give them a free call on 0808 2080 888.
Hope that helps a little @BrianP, please keep us posted about how you get on.