Hello @PatriciaBetsy
Thank you for taking time to send in your post, and welcome to the forum.
Im sorry to learn about your diagnosis.
I’m sure receiving the diagnosis was scary, I know when i got my Chronic lymphocytic leukaemia ('CLL') diagnosis I was very scared and confused and lots of other emotions, and I’m confident you have lots of questions
It goes without saying, your medical experts are the first and best point of contact all be it we have trained nurses on the forum and on the phone who are able to communicate with you and provide medical sound information. I am the other forum support volunteers cannot give you medical advice.
I’m also confident you will find others on the forum in not dissimilar circumstance who will communicate with you.
You may find the link Newly diagnosed with ET - #8 by Modesigns and Essential Thrombocythemia good places of information where others have posted their comments and experiences to date.
If you prefer, please remember, you can always call us for free on [0808 2080 888](tel:0808 2080 888) (Option 1) to speak to one of our Support Service Nurses in confidence.
Our phone lines are open:
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Monday, Wednesday, Thursday, Friday: 10am – 4pm
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Tuesday: 10am – 7pm
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Saturday: 10am – 1pm
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Sunday: Closed
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Bank holidays: Closed
Alternatively, call us anytime and leave a message and we’ll get back to you within one working day.
I do hop you let us know how things go
Kind regards
Mike