Hi @lousyT. Have you discussed your worries with the school?
Thanks Erica! I have a few of those, but sometimes itās difficult to know which ones are caused by other issues e.g. I have high bp, but I do get out of breath easily. I also have joint issues, but itās probably for other reasons. Itās sometimes difficult to know the reason, but the list is helpful. I guess thatās why the consultant just runs through all my other weird ailments, just to see if things link up!
Hi Nichola, thank you for your reply. Yes, unfortunately I have, but they have said that if my daughter doesnāt attend, they will get the local authority involved (education welfare officers). So itās difficult to know what to do when this issue comes up again soon. Some schools are more understanding than others it seems.
Sorry Franko, thank you for your reply - I havenāt been on much. Iām quite lucky in that my consultant is a nice, friendly man, I just find that heās quite intellectual and Iām not on his level! I have felt a bit isolated by other peopleās reactions - in my case I think that a lot of people donāt really understand what a chronic blood cancer is vs. an acute one because Iām not having treatment at the moment. I hope that you donāt feel so alone any more and have support
Thanks @lousyT . Iāve learned to adapt and call on people when I need them. Often people in a place like this are more useful as everyone has had related experiences whereas friends and family, however well meaning donāt really get it. Hope youāre doing ok. Let us know how you get on.