Hello there @Lizzi, welcome back and I’m sorry to read of your diagnosis with Polycythaemia vera ('PV'). I was diagnosed with Polycythaemia vera ('PV') as well, back in 2023, although I take hydroxyurea instead, in capsule form. I’m sorry too to read of that recent operation, hopefully you’re recovering well.
You know, there’s a lovely thread of forum members many of whom take peg-interferon and live with Essential Thrombocythaemia ('ET') which I’m sure you know is closely related to Polycythaemia vera ('PV'). They’re a friendly bunch and I bet you’ll get some helpful information from their experiences of self-administering: ET diagnosis finally sinking in
There’s some Blood Cancer UK information here about cytoreductive medicines like ours: Polycythaemia vera (PV) treatment | Blood Cancer UK and from Macmillan too: https://www.macmillan.org.uk/cancer-information-and-support/blood-cancer/polycythaemia-vera-pv
Would it help to speak with the Blood Cancer UK nurses? They can answer medical queries and point you towards other useful resources and their number is 0808 2080 888.
Don’t forget you can use the search box at the top to look for specific topics like “peg interferon” and the like. Hope that helps a little @Lizzi, do please keep us posted.