Recent diagnosis CMML

Recent diagnosis
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704

Dear Pierre, nice to e-meet you :slight_smile: I just want to add my 50 Cents to your question.

As the fantastic people in this forum have already told you, it is a very personal decision and everyone has to decide for himself/herself. The whole process for a transplant is challenging.

But as you said before: you are “lucky” that you still have this option. Many people are diagnosed when it is too late for transplant. Or their disease is progressing so quickly or getting out of control that it is suddenly not an option anymore. One of my dad’s haematologists said, if you are quite young and you have the chance you should always take this option into consideration (transplant). As it still is the only way to heal Chronic myelomonocytic leukaemia ('CMML').

705

@Pierre sorry I think I pressed the wrong button and did not reply to your message correctly …

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Hello @Sisi @Lyndam @Logsie @Rick @CathyP @Unclejack @Gaynor @Cati @Bonny16 @Hellodolly

I’m just reminding everybody I can think of about the Chronic myelomonocytic leukaemia ('CMML') SUPPORT meeting hosted online by Leukaemia Care next Thursday, 21st May from 2pm. If any of you think of anybody else please @ them and send a link to this post.

It would be great to see those of you affected by Chronic myelomonocytic leukaemia ('CMML') for mutual support. No speaker this time so it’s for us to share our experiences of living with Chronic myelomonocytic leukaemia ('CMML').These meetings really help ease the feelings of isolation having been diagnosed with this rare disease.

If you are already registered for these meetings, you should get automatic reminders. If not, you can register for these meetings meetings here

1 Like
707

@ChrissyD Thanks so much for this. Really sorry but we won’t be able to make it…again! :pensive_face: My husband has a physio appt for his back that afternoon. Please send our apologies. Thanks. Hope meeting goes well. Best wishes :face_blowing_a_kiss:

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@chrissyD I am having treatment everyday nxt week so won’t make it sadly. Hope to make it nxt time especially after a difficult week. Good luck to all x

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Thanks Chrissy, I kind of worked out when it was from the Leukaemia Care site, but good to have it confirmed :slightly_smiling_face:

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@ChrissyD thanks for the reminder for the zoom meeting tomorrow. Are we getting the link to join this. Hope all is well with you.

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Hi @Lyndam

I got a reminder about the meeting on 13/05/26 and was informed by Nick that I would get a link to join! Still haven’t had that so I just clicked the link on that reminder to re-register and I’ve now got Zoom join emails for the July and November meetings as well!

Honestly don’t know what’s going on but I feel that there is something wrong with their system and worried people will miss out!

If you also got the reminder about the meeting I suggest you click the link to register again? Hope that works!

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@Lyndam

PS If that doesn’t work, apparently the link to join the meeting is the same as the last meeting so if you’ve still got that one in your past emails, try that!

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Hi @ChrissyD thanks for this, didn’t keep the link so have now re registered as you suggested and have the link like you and have July and November link as well.

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Oh that’s good @Lyndam . Seems a bit daft for LC to send out the Join links so far in advance? They’ll be lost in my mass of emails by the time those meetings come around? Just have to flag them or hope we get reminders nearer the time!

See you later