Hello @pammy, I’m sorry to hear you’re struggling with these side effects.
The bowel problems you’re describing are something others on imatinib have talked about in our community, and you might find it helpful to have a read through these threads where members have shared their experiences: Imatinib side effects and Side effects with CML treatment. You can probably find more using the ‘Related’ feature at the bottom of the page or the Forum search function. Our CML treatment and side effects page also has some useful information about managing TKI side effects.
That said, because your symptoms have been getting worse rather than settling down, it’s important to let your haematology team know what’s been happening. May I ask if you’ve been in contact with them about this?
If you’d like to talk anything through in the meantime, our Support Line is here for you on 0808 2080 888 (option 1) or support@bloodcancer.org.uk. It’s staffed by our Blood Cancer nurses, so you’ll be speaking to experts.
Take care,
Ceri - Blood Cancer UK Support Services