Hi @Byrnebaby, lovely to hear from you and well done being so prepared, and your husband sounds like a brilliant support. I’ll let others with experience in the community share their own top tips, but wanted to post some official resources for you as well.
On the home preparation side, your hospital team will give you specific guidance tailored to your situation when the time gets closer, so it’s worth keeping a note of your questions to ask them - they may have particular recommendations based on how your recovery is going. The Stem Cell Transplant Shopping/Packing List thread, although a few years old, has lots of practical tips from members who’ve been through it, and the Do’s & Don’ts thread is also brilliant for this kind of preparation – both are well worth a read.
I also wanted to share our stem cell booklets, which we’ve produced in conjunction with Anthony Nolan. The first covers what to expect leading up to and during transplant and the second is a practical handbook for recovery afterwards, covering topics like nutrition and getting back to daily life. You may also find this Anthony Nolan downloadable resources page helpful too.
The food and nutrition questions are important area, and the good news is that thinking around this has evolved. We have a page specifically on eating safely with neutropenia which covers the current evidence-based guidance and is much less restrictive than older advice you might come across online.
Apologies if I’m bombarding you with links - please do work your wayy through them at your own pace, and get in contact with Support Services (0808 2080 888 or support@bloodcancer.org.uk) if we can help answer any specific questions.
Take care,
Ceri - Blood Cancer UK Support Services