Upper leg pain

So glad you don’t get any side effects from the Pegasys. There’s a group of others with Essential thrombocythemia (ET) diagnoses (that I see you’ve commented on) who share their ongoing experiences with it, including recent issues with low stocks of the medicine, maybe you’d like to check in with them: ET diagnosis finally sinking in

You know, I feel for you wanting to be able to drink alongside treatment. I was told with the hydroxyurea I take to be careful of alcohol as it’s carcinogenic. The weird thing is that I’ve actually totally gone off alcohol! I used to enjoy a beer after hiking or when socialising, but now when I fancy a drink I’ll take a sip and feel instantly nauseous like seasickness. Very annoying. I think moderation is whatever feels fine to you, and maybe you’ll go off beer anyway! Try not to worry about a drink or two now and again.

Glad those MPN (Myeloproliferative neoplasms) trackers may be of use. There’s so much support out there if we need it, sometimes we just need being pointed in the right direction by our kindly nurses and other specialists.

Take care @RA2000, so glad that leg pain of yours has gone!

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