Hi, I am new to sharing in this forum but I have found it helpful to read others’ experiences since my daughter was diagnosed at the end of July with Acute myeloid leukaemia (AML). She has just completed her 3rd round of chemo on what was planned to be a 4 round treatment plan. This week however, mid way through her chemo, we were told there is a chance she will need to have a bone marrow transplant and we could get her sister checked to see if she is a match. I feel totally floored by this sudden (potential) change in her plan. I know things can and do change with treatment but we thought she was doing so well and getting through her treatment, I don’t know how I will tell her it will take so much longer if we do have to. I’m also not sure I have the strength to help her through such an aggressive treatment. Apologies for the long post, I think I am looking for some positive stories and experiences that can show me a light at the end of the tunnel
Hi @Emily
Welcome to the supportive forum. I am sorry to learn about your daughter. What a shock for all of you.
I have a thread on here as my daughter was diagnosed with Acute myeloid leukaemia (AML) when she was 20 years old. I can empathise with all that you are experiencing. My daughter is in remission and this month marks 2 years post treatment.
What I have learnt is that everyone’s diagnosis and treatment plan will be different. Your daughter’s blood cells and genetics will be being examined by her consultant and this takes time. What they find will inform her treatment plan. I think this is why they have probably informed you about the transplant now. We currently haven’t had to go the transplant route but there are others who have on this forum with some wonderful success stories.
I found writing down all of my questions and concerns and sharing them with my daughter’s medical team was helpful. Ask about any specialist support from a paediatric cancer team. You can also set up a call with the @BloodCancerUK-SupportTeam here. The team have specialist nurses who are so lovely and supportive. 
The time element is daunting. My advice is to try to take each day as it comes as things can change quickly. Do continue to use this forum as I found this a HUGE source of love and support.
For now I am sending you and your family a big hug and positive thoughts 
Sarah
Thank you so much for your reply, I had seen some of your posts about your daughter and I found them very reassuring during my own daughter’s initial diagnosis. I am so glad to hear she is doing well.
I will look into the support offered through this site thank you, I think it could help to speak to them. Our hospital is actually solely for children so we are lucky in the sense that all the staff are specialised in paediatric care.
Our 3 year old daughter has now been tested to see if she is a match, I am now hoping that she is but also that we don’t need to use her at the same time.
We have made it home to wait for her next bone marrow check, hopefully no unplanned admissions in-between 
Awww thanks for your update @Emily .
Enjoy that special time at home and I hope there is positive news re: sister stem cell match.
Do keep us posted when you have time .
Sending every good wish
Evening,
Sorry to hear about your current situation. I was diagnosed with Acute myeloid leukaemia (AML) in 2017. After a few rounds of chemo the treatment hadnt worked as well as they hoped so i needed a special £300,000 drug from America which hadn’t been tested in England before. Thankfully I went in to remission with this however still needed a stem cell transplant.
The potential risks they tell you can be scary but I’m very sure with the age of your daughter a stem cell transplant would be the best option if recommended. Ive been in remission for 7 years and live a completely normal life. Travelling, working, partying. (28 years old now) your daughter will have all this to look forward to in the future.
Let me know if you have any questions.
All the Best 
Hi @Andy28 thank you for your reply, I know every case is different but it really gives me hope to hear of positive stories. I want nothing more than for her to get back to a normal life and be a child again, it feels like she has had so much taken from her already. I am dreading the talk about the risks of the transplant but trying not to get ahead of myself and, as you say, if we do get recommended that treatment it would hopefully give her the best chance of beating this.
Our little one has started with really high temperatures this week and is full of cold despite us keeping her out of nursery and plaugroups. Trying to keep a 3 year old and 6 year old apart in the same house has been impossible so I am dreading/anticipating C (our 6 year old) spiking a temp and having caught it too.