Hello, im in the same club of Polycythaemia vera (PV), in 2023 from a routine blood test control from my GP ( im 41), i had an appointment to a haematologist, high platelets, Jak 2 positive, biopsy confirmed my diagnosis Polycythaemia vera (PV). I havent heard any explanation of my diagnosis, only sugestion from my haematologist to have a conversation with my husband and google it… it was the worst waiting and googling time, and bad thoughts sure, but in a short time have found this forum ( by googling:)), when ive found a big support . Firstly I have changed my haematologist and choosed another treatment ( interferon). Every month i come to control to my doctor with blood test. Sometimes i have headaches or feeling unwell, but i know my diagnosis, try to keep my mind patiently. Grateful for supportive and carrying thougts here 
Hi @Dean211077
Definitely not rude , please don’t apologise
Hope you are doing okay
Hi Dean
You are not alone. I was diagnosed with Polycythaemia vera (PV) (I can’t even spell it yet) in March, I saw the nurse vampire team as they jokingly call themselves in Oxfordshire for a venesection the same day , and was put on blood thinners. I had a bone marrow biopsy yesterday which I hope will confirm the diagnosis and not spring any more surprises. It is a lot to take in, I felt so alone as the medical team told me how rare the condition was so thank you and others on the forum for sharing your experiences. I have to wait 5 weeks 3 days for the results of the biopsies which will feel like an eternity. I realise now I have been denial, I have told a few close friends and colleagues but decided not to tell others for fear of pushing them away or of them treating me differently. I went back to work 4 days after my diagnosis, trying to get on with it. I was intending to retire this month, I am 62, but decided not to because I realised i was better at work around people and focused on something else. I surprised myself because I imagined if faced with a situation like this I would quit work immediately and find something more rewarding to do with my life! I think routine does help me though. I guess we all need to find our own coping mechanism. I already feel better for finding this site and writing this message and I hope you have now found the support you need. Wishing you all the best.
Hi @Hilary a great big welcome and thanks for getting us up to date with the last month.
I was fascinated by the way you explained how you had been intending to retire this month and have now changed to mind.
Actually I think it is genius and such a good idea to keep your routine, whatever works for you.
I really look forward to hearing more about you.
Really look after and be ever so kind to yourself
@Hilary I was diagnosed with Polycythaemia vera (PV) in 1999 and was able to live a normal life including working in what at times was a stressful job. In 2023 the Polycythaemia vera (PV) progressed to Myelofibrosis which for me was a whole different ballgame and I decided to retire to take out one source of stress in my life. It has taken a little while and I will be retiring at the end of April aged 64. Not far from when I was planning to retire in any case.
Please let us know how you get on with your results.
Good evening all. So first to those worried about my clothing state last week don’t panic I was fully dressed when exiting the house nobody needs to see me in my pants in the morning 
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Even after sleeping in I have now managed to complete 2 jobs, 1 in Poland and 1 in Spain and both of those customers have been happy with the service I provided, so now I’m happy that I have that side of my life back in order and don’t need to stress about it!
This week is a hospital week yesterday was blood tests, today I’ve undergone the following procedures Bone Marrow Aspirate / Trephine / Markers / Cytogenetics. I think that is just the long way of saying a Bone Marrow Biopsy but what ever it was I’d rather not have one again it wasn’t so much the pain when the first sample was taken (I did cry out like a big wimp, but more from the surprise than the pain, honestly ) it was the amount of times they apologised during the procedures that just made me more and more uncomfortable about what they were doing and why they were apologising??? Especially because it always seemed to be just before they started drilling 
But it is all done now I am staying at my parents eating chocolate biscuits thinking this is not a bad life and reading the MacMillan Cancer Support booklets I picked up from the treatment center and they like everything else I read keep
talking about how I need to discuss things with my team of healthcare professionals or how my GP, Cancer doctor or specialist nurse will discuss ways to deal with things. At what point will
My team be assembled and when do I get to meet them or as in the Marvels Movie Avengers do I need to assemble my own Team of Healthcare Professionals to be my hero’s in the battle against the evil big C???
I am back in to hospital on Friday for my next venesection and if I do need to pick my own team then Lara head of planned care department will be my first pick although I’m not sure if she would have time as the women seems bionic with the amount of work she seems to do in that department! I don’t want to put more on her but currently she has been my only point of contact and that will continue until May 28th my next appointment with the specialist with hopefully all my results and finally a diagnosis but let’s see.
Thank you all again for letting me rant on here as I do and I hope you are all well.
Hi @Dean211077 thanks so much for the update, this week certainly is a hospital week for you.
Please do keep updating us, especially your appointment on May 28th.
How are you coping emotionally and how is it being at your parents?
Be kind to yourself and I think I would be munching the chocolate biscuits too.
Thank you for reaching out. I hope your workplace gives you a good send off! I sense when I have my final diagnosis, I may not be far behind, it’s only been a week since my biopsy and I find my mindset changing. I guess this is all part of the emotional rollercoster, I am now on.
Hi @Hilary and @Jonpd I will copy the Blood Cancer UK details on money and work for you
Blood cancer: money and work | Blood Cancer UK
Decisions, decisions, and a very personal one, take your time.
Look after yourselves