Hi, I’ve recently relapsed with Acute myeloid leukaemia (AML) after having 4 rounds of chemo previously. I had hoped to control it with quizartinib for a few years as I had the FLT3 mutuation..A stem cell transplant was deemed too risky initially as only a 9/10 match but I’m here again having chemo and its now back on the cards. Worried about the 9/10 match and the consequences, has anyone else had a mismatched donor and can share their experiences please? Looking at the end of October for transplant.
Hi @Debcosgriff
Thanks for your update on this forum. Gosh, it certainly sounds like things are chopping and changing for you so it’s perfectly understandable you have some worries.
I have a thread on here as my daughter was diagnosed with Acute myeloid leukaemia (AML) in 2023. She has not received a stem cell transplant but it was discussed early in her treatment. She is mixed heritage and has two unusual genetic mutations (flt3 and tp53) When looking for a potential match her consultant was very happy to proceed with a 9/10 match. At one point they were discussing a 7/10 match.
I would discuss your concerns with your team. Do remember you can also book a call with the wonderful specialist nurses here @BloodCancerUK-SupportTeam on this forum. They are a great source of advice and support.
Do take care of yourself and keep posting when you have time.
Sending positive thoughts ![]()
Hi Sarah,
Thanks for the message and sorry to hear about your daughter too. That does sound encouraging from what the Consultant said re a 9/10 match. I am dreading that stage and potential complications especially going into the season of coughs and colds etc but must face it and hoping it will work this time and keep the Acute myeloid leukaemia (AML) from relapsing .
I hope your daughter is doing ok, it’s such a rollercoaster of a journey and impacts so many people along the way. Sending best wishes!