Hi
Thanks Jo and Erica but cannot find link to guide. Am I on the right page, see below . Sorry to be a nuisance. Marylin
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Hi Nicola and any interested guests
Sorry to say the WMD has defeated us, I seem to have jammed the seat on somehow and despite all our efforts, not to mention language, cannot get it off. We have had to call in reinforcements in the shape of niece’s partner, he is ex army so should be able to get to grips with this beast on wheels. I don’t think he was in the Bomb disposal squad. We do need to be able to fold it up easily to get it in the car and unfold it to use it. You have to remove the seat to fold it up. I have visions of us swearing at it and kicking it (hip permitting)as it will not comply, in a NT car park surrounded by horrified NT members. I would quite like to remove it from our living room as soon as possible.not sure it adds to the decor.
After our efforts this morning we had to have a pre lunch nap. For over an hour. I will post a photo if it is ever complete. Or you may receive an invitation to its wake. This may only have cost £350 but the expensive ones in mobility shops are looking much more value for money and attractive, at the moment!
Marylin
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The car argument is reminding me of visits to IKEA with my husband!
I’ve got everything crossed that your nieces husband manages to complete it. If not I’ll await the invite. Everything crossed 
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Hi @Marylin you are never a nuisance.
I had your image as the screen when I opened up, but earlier pressed something and got the the banner up and now every time I open the screen I get my banner back.
Help again @JoBloodCancerUK and @BloodCancerUK please.
I bet you needed a nap after your exertions, I hope that your niece’s partner can help I would hate to see you being excommunicated from the NT.
£350.00 is a lot of money, we await with anticipation, I will eat cake and hot chocolate whatever the outcome.
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Dear Marylin… one thing that struck me about your post was that, despite it all, you have still retained your sense of humour. That is so wonderful and I suspect it always keeps you going on those dark days! Re finding the energy to investigate alternative suppliers, I feel your pain! I did go through Martin’s recommendations one day in a burst of resolution and, having put in all the required figures, I discovered that there was a cheaper one… a whole £6 cheaper a year!! So I too decided to do nothing :-). Keep on sharing 
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Hi Marilyn and other guests.
Your father did better than mine when you were registered, the family story is my father was so excited to have a baby girl he got the i and the y muddled up.Hence the spelling of my name. Few people ever spell it correctly.
I have good news for once, the niece’s partner arrived this morning, and whilst we commiserated over over our various experiences with cancer, he had lung cancer, he did a few tugs and tweaks and the seat lifted off. It now comes on and off relatively easily. He attached the rest of the bits and pieces and we now have a fully loaded and charged weapon of mass destruction. See photo below. That is my nearest and dearest of 61 years, Bill, we met whilst we were both at school, operating it. We were married 56 years ago, I still find it incredible that we have had our golden wedding anniversary and are still going on. He having recovered from his chest infection and me from my 3rd jab, we are now off to Tintagel to retrieve the slimmer and trimmer dog Pip from her visit to boot camp for dogs I.e. my daughter’s. As now we have the WMD up and running, we can arm it with a Jack Russell and it will be positively lethal.
Fortunately my sense of humour has remained intact, albeit it is rather irreverent. I use humour to combat the horrors that I can do nothing about, laugh and the world laughs with you, but I now know that I don’t cry alone, thanks to all my lovely guests. I hope you will invite me to all your pity parties in future. Marylin
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I’d love to come to your pity party @Marylin and I promise not to touch your Danish pastry, I’ll bring my own. You’re entitled to feel sorry for yourself. You like all of us have been through a lot and we all have black days. My sense of humour was the only thing that kept me going in the dark days of 2018 when I was in hospital and everyone else was enjoying the hottest summer ever and the world cup. Be kind to yourself and eat plenty of cake 
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Sorry you are still having difficulty finding this link. It is a bit difficult to find when looking for it on a tablet or phone, I will have a chat to the team on Monday to see if there is a way to change this. I am hoping you may be able to open this link to the guide to getting started. It is in PDF format so hopefully it will be compatible with your IPad mini but please give me a call on the Support Line in the morning if you are still struggling and we can talk it through on the phone. I will be working 10am -1pm on 0808 2080 888.
Guide to getting started June 2020.pdf (1.2 MB)
Best Wishes
Jo
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Now that’s an achievement!
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How are you keeping @Marilyn?
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Brilliant Marilyn very glad “transport” is up and running! - and the addition of a Jack Russell is even better 
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Rant away, if you cannot rant here where can you.
Sending hugs xx
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Wow @Marylin your hubby is really showing off a bit by reversing the WMD, especially if you live on a hill. A slimmed down, aerodynamic, Pip, your Jack Russell, is the ultimate accessory.
Yes, my sense of humour is fully intact and does not have to be removed when I get in the car, although my hubby might like it to be.
You certainly do not cry alone and I think it is important to cry as it is a release, and I tend to suppress my emotions, which is no good for me medically. My parents felt that good little girls do not show emotions.
My smiley mask pops on all too readily, a teacher at school called me a Cheshire Cat.
Oh, Tintagel sounds absolutely wonderful.
Take care my valued party inviter.
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Thanks @JoBloodCancerUK you are a technical genius !!!
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Thanks @Marilyn I agree I am not looking to change energy suppliers, I shall conserve my ‘energy’ for eating hot chocolate and cake.
Look after yourself
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Hi Nicola
Thank you for asking. Not doing too well at the moment. My daughter came to take us out for coffee this morning but neither of us felt well enough to go. Bill obviously hasn’t recovered fully from his chest infection and his blood tests show a thyroid problem he has retired to bed to rest. I have just staggered around the block with Pip but Bill has requested that Pip returns to boot camp with my daughter. I don’t know if it is the 3 rd jab I had about 8 days ago but all the Polycythaemia vera (PV) symptoms, headache muscle cramps, swears, blurry sight, dizziness, digestive troubles etc have returned, not to mention the extreme fatigue. All minor things but together a large hurdle to deal with. I do not want to think about doing anything let alone do it. I walk because Know my hips and knees will be worse if I don’t. Thankfully my daughter has turned to and is cooking our roast chicken Sunday lunch. I would just dig a ready meal out of the fridge, and slam it in the microwave, I just don’t have the energy to cook.
The seat of the WMD wouldn’t budge when we tried to show my daughter how it folds, so we loaded it into the car and I will take them both to the garage tomorrow the car for its MOT and ask the lovely garage brothers to sort the WMD as well.
The GP is ringing re both of us tomorrow so hopefully he will sort us out a d I have a haematology consultation on 15 th .
I was reading in the Oldie mag about a wrinkled crinkly, yellowing autumn leaf hanging by a gossamer thread, dancing in the autumn winds, the gossamer thread that is holding this aging autumn leaf up, is stretched extremely taut at the moment, almost at breaking point, I fear.
On the bright side the sun is shining between the showers and a lovely roast chicken lunch has been put in front of me. I shall swallow the rest of my Sherry, and tuck in.
Marylin
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Thank you jo,
I have printed this off. I am sorry to have been a nuisance. You would never think I taught IT for Adult Education. It was a few years ago and Microsoft, and I haven’t kept up as I should. I am sometimes at sea with Apple. I do have up to date Microsoft software on a laptop which I rarely use. Marylin
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Hi @Marylin. It’s good to get an update on how you are doing. It sounds like it’s still all a bit of a challenge at the moment.
I’m glad your daughter is cooking a home cooked meal for you. Better than something from the fridge.
Let us know how the mechanics goes - for both vehicles, and how you go consultations for to.
Please take care of yourself. I really hope you start to feel a little better soon.
Lots of love X
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Oh @Marylin it sounds as if both of you are struggling.
I bet that chicken dinner was absolutely wonderful.
Sorry Pip it is back to boot camp for you.
I hope the car passes it’s MOT and the WMD pesky seat gets sorted for good.
I find it so difficult to know what to attribute my symptoms to sometimes, they are so generic.
I hope you really both say it how it is really is for you with your GP tomorrow.
I got absolutely soaked to my skin on my walk this morning then an hour later and the sun was shining !!!
Just cleared up from dinner, not going to settle down for Strictly.
Please let us know how the 2 for 1 GP appointment goes and look after yourselves.
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Oh dear poor you its awful having days like this isn’t it. My day is almost mimicking yours except I had a fight with a concrete slab that removed chunks of my calf and my husband has Alzheimers but the same problems as you are having re vaccine but aren’t we lucky to have it available. I think a coffee and cake are as a good a cure as all the antibiotics. Look forward to better days even with blood cancers they do come along mostly and the beautiful autumn leaves give us a lovely display at the moment. Thank you for your invite to the pity party even though I turned up late, we need to know we are not alone with our worries. Take care too.
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