Hi @d00d, what a reassuring thing to see - nearly 20 years living well with Polycythaemia vera ('PV'). You’re very welcome here.
I’m glad our wonderful @Duncan and @GenesisDevice have already picked this up. I did want to add - if these symptoms are worrying you and May feels like a long way off, you don’t have to wait. It’s entirely reasonable to contact your haematology team sooner to flag what you’ve noticed - or you can call our Support Line on 0808 2080 888 (option 1) and speak to one of our clincal nurses there, who can talk it through with you in the meantime.
On the stage question, I can’t give you a clinical answer on it but our PV prognosis page is honest and may be useful, and your haematologist is the right person to explore what any changes might mean for you specifically.
We also have a dedicated page on itching with blood cancer that goes into more detail than the general symptoms page, as it covers why itching with MPNs can present in different ways, which might be helpful given that yours has changed. And if you scroll to the bottom of this page, you’ll see a ‘Related’ section where the forum pulls up conversations on similar topics automatically, and there’s a PV itchiness thread with replies from people who’ve tried various things that’s well worth a browse. It’s a handy feature for finding conversations you might not otherwise come across.
Do keep us posted, and please do reach out sooner rather than later if you’re concerned.
Take care,
Ceri - Blood Cancer UK Support Services