any body on xerelto for Polycythaemia Vera ? doctor prescibed having lesions on body
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Hi @Bugsy26 and welcome to the forum.
You’ll find it a very supportive community.
It’s not a medication I’m familiar with as I have a different Myeloproliferative neoplasms ('MPN') called Myelofibrosis.
One of our wonderful Forum Support Volunteers @Duncan is very switched on with the different Polycythaemia vera ('PV') treatments.
You could also reach out to the @BloodCancerUK-SupportTeam and the wonderful @BloodCancerUK_Nurses for specific advice.
Call for free on 0808 2080 888 (Option 1) to speak to one of our Support Service Nurses in confidence.
Our phone lines are open:
- Monday, Wednesday, Thursday, Friday: 10am – 4pm
- Tuesday: 10am – 7pm
- Saturday: 10am – 1pm
- Sunday and bank holidays: Closed
Alternatively, call us anytime and leave a message and we’ll get back to you within one working day.
Hope that helps
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Hello there @Bugsy26, welcome to the forum. I imagine you’re asking for yourself about the Polycythaemia vera ('PV') mentioned, in which case I’m sorry if that’s your diagnosis.
I live with Polycythaemia vera ('PV') and haven’t heard of xerelto (Xarelto?), sounds like it’s to stop blood clotting? From my non-medical understanding Polycythaemia vera ('PV') is usually treated with venesection, aspirin, and often hydroxyurea or similar: Polycythaemia vera (PV) treatment | Blood Cancer UK
Would it help to speak with the lovely Blood Cancer UK nurses? We forum members can’t offer medial advice, but the nurses are specialists in all this. Contact them on 0808 2080 888 or support@bloodcancer.org.uk.
Hope that helps a little @Bugsy26, let us know how you get on.
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Hello @Bugsy26
Thank you for posting on the forum.
In the UK this drug, Xerelto is more commonly know as Rivaroxaban. It is often described as a medication to ‘thin’ the blood, which isn’t actually true.
It works by interfering with the how platelets coagulate or stick together, not by ‘thinning’.
People diagnosed with Polycythaemia vera ('PV') are at risk of blood clots due to having too many red blood cells in their body, so drugs like Xerelto and other anti-coagulants are prescribed to lower this risk.
May I ask, have you been diagnosed with Polycythaemia vera ('PV'), and have you been started on Xerelto? It works in a similar way to aspirin, which is more commonly used in UK, but some people aren’t able to take aspirin so would be prescribed Xerelto or another similar one instead.
So have you swapped on to this due to you having lesions on your body? Were you taking something else? Do you have any specific questions about being on this medication that you want to know from others?
If you would like to read some information on it, this is a helpful page by NHS: nhs.uk/rivaroxaban
As both DuncanB and Duncan have said, you’d be welcome to call our support line if you want to talk to one of the nurses.
Best wishes, Heidi.
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