Dear @DottieB
Thanks so much for posting. May I ask whether you are on treatment or on ‘watch and wait’? Have you discussed your fatigue with you Haematology team? I ask this as they may be able to support you around this and perhaps review your blood counts, in particular your iron and vitamin levels?
We do have some information on Blood cancer and fatigue | Blood Cancer UK where we talk around what you can do to help your fatigue:
If fatigue or tiredness is new for you, or it gets worse, tell your healthcare team so they can assess whether it indicates a change to your health.
If you experience fatigue as a result of your blood cancer or treatment, there are things you can do to manage it. All the tips here have come from people with blood cancer.
- Balance – You need both rest and activity to fight fatigue. It may sound strange, but being more active actually reduces tiredness.
- Keeping active - Find tips and tools to help you get started, including some exercise videos for people with blood cancer.
- It’s ok to ask for help – What could you delegate? Could any friends or family help?
- If you’re still working, think about what changes would help you – and be open with your boss if you can. We have more information about your rights at work and things you could ask for to help you.
- Learn what’s doable for you – Keep track of how you feel each day and week. You could use a fatigue diary or an app. Tell friends and family what works for you and plan rest in between activities – video calls can be draining!
- Be kind to yourself – You’re not being lazy. You don’t have to be grateful and positive all the time. If you need a rest day, have one – because looking after yourself is a priority.
- Take care of yourself – Living with fatigue can make you feel down. Feeling depressed or anxious can also cause fatigue. Find out more about getting support for your mind and emotions.
- If you need help explaining fatigue at work, our fact sheet ‘If your employee or colleague has blood cancer’ may help.
It is understandable that you are struggling with sleep, there is some guidance around sleep hygiene here from our colleagues at Macmillan: Difficulty sleeping (insomnia) | Macmillan Cancer Support. Having a sleep routine is really important but I would suggest talking to your treatment team or GP if this continues despite your efforts.
Do call us if you would like to talk anything through Blood cancer information and support by phone and email | Blood Cancer UK
Kind regards
Gemma