Asymptomatic myeloma

@Paula1 ,

How is the harvesting going ? I hope you have managed to get the stem cells you need. Did you have any side effects from the growth injections that you had at home? Thinking of you at this time, take care, keep in touch.x

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Hello I’m all fine thank you, I have had my harvesting done all fine no side effects.
With the daily injections I had back pain on day 4 & 5 but nothing now, to be honest I feel fantastic.
I see consultant 17th April and then 22nd April I start having bits of treatment before transplant.
How is hubby getting on?
:kissing_heart:

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Please do keep us posted @Paula1 really look after yourself

@Paula1 , great news. Glad everything still moving in right direction. Full steam ahead! :smiling_face:
Hubby had stem cell meeting last week. He starts growth injections around 10 April. They not giving him anymore chemo at this stage. Think you said you were having cyclophosphamide as well as injections.Then he has the harvesting. How many days did it take to harvest your cells? Not many I assume with you being young. You are doing so well, keep staying positive, it works wonders.Take care.x

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Hiya. The harvesting took 5 hours, I’ve had no side effects. I’m having my line put in on 22nd
I have chemo (melphalan) 23rd, then big day on 24th for the transplant. Not feeling nervous yet but next week I will be rather anxious.
Sending lots of love :kissing_heart:

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Oh @Paula1 I do like to have a plan but I think it is so natural to get anxious, especially when the unknown is involved.
We are here for you and I am sending you virtual hugs, please do keep posting when you can.

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@Paula1 , Great to hear from you and to get the updates .
Really good news it was only one day for the harvesting!
Also nice to know you didn’t suffer any side effects. It’s quite normal to be nervous & anxious, but look how well you have done up to this stage. You are obviously quite resilient and are strong ( body & mind). All the way through your treatment you have responded very well, so no reason why this won’t continue.We are all routing for you to get through the transplant as easy as possible, so you can get back to your family and some kind of normal. Sending you lots of hugs, we will be thinking of you in the run up to the transplant.
Hubby has started with a few aches and pains in his back & legs, which are intermittent. Hoping they are not permanent, but aware myeloma can cause these symptoms, so keeping fingers crossed. He has his growth injections end of next week. He’s about a month behind you I think. Take care, you will be in good hands. Please check in and let us know how you are, when you feel up to it.xxx

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Hi @Paula1 , just checking in on you. I know things are getting pretty close now. Hope things went ok with your consultant and it’s still all systems go. We are thinking of you and have everything crossed!! You will be fine, you have done so well so far.
Break a leg for next week, sending you lots of positive vibes, hope you manage to keep in touch. Maybe you will just chill out whilst you recover. We will still be here. Take care, speak soon.xx

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@ Paula,

P.S. hubby now had ecg, echo ,growth injections & harvest. ( took 3 days :frowning:) What does the breathing tests entail?? Thankyou…:smiling_face:

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Hi Olivia
I saw consultant yesterday had fantastic news he said I was in remission :clap::clap::clap:
I have my line put in Monday, chemo all day Tuesday, then transplant Wednesday, I still have my hair even though it had thinned a little.
Do you have any dates/info on hubbies transplant?
Take care & keep in touch please xxx

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Omg @ Paula,
Great news, I bet that’s lifted your mood. So good to hear.Hubby had a bit of back & leg ache from the growth injections, but is subsiding now. He got a bit fed up having to go in 3 days as you are really restricted when harvesting and can’t do much.At least that bit is over now. Hopefully he will have his transplant end of May, but no set date yet. He still waiting for breathing tests, that’s why I asked what kind you had,
Remission , hooray, fantastic. I told you how well you were doing!! Keep up the good work and good news Paula. It is so nice to have the company of someone going through the same journey as hubby and only one month apart .
We will be thinking of you more than ever next week, stay strong , be kind to yourself, but recover at your own pace. Put yourself first and give yourself the best chance to recover quickly.You have everything going for you. Take care.xx🥰

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Oh @Paula1 that is great news, time for a celebration, I think.
Yes, @Paula1 and @Olivia I believe in celebrating every little win,
Waiting and not knowing are horrible and we seem to do a lot of it.
Take care and look after yourselves

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@ Erica,

Hi, how are you doing? Hope you are ok.x

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Hi @Olivia thanks for asking, I am doing OK thanks and have lots of cardiac appointments coming up.
I received 6 letters in 3 days !!!
I am looking after myself, thanks

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Gosh @erica, that’s a lot of letters. Glad you doing ok. Hospitals definitely become our second home with all the appointments! Hope you are looking after yourself as you often suggest to us all .:grinning:

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I hope they get you sorted @Erica
Thinking of you

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