I am two years post Stem cell transplant (after chemo for Acute myeloid leukaemia (Acute myeloid leukaemia (AML))), and am suffering the most chronic and debilitating fatigue. My energy levels have never really improved despite my efforts to be active and intentionally exercise (frustrating, as I was really fit before the leukaemia came). Very simply, when I overdo it, I crash and burn for a couple of days. I am also very susceptible still to every bug that comes anywhere near me, and seem to always be ill!
Honestly, two years in, I am grateful to still BE here, but it’s a huge adjustment accepting this life I now have.
My consultant told me yesterday that my chronic fatigue isn’t related to the treatment/transplant and that he’s never seen this before….. and yet my CNS tells me that on occasions, she has had patients with this.
I’m really conscientious about trying to live a healthy lifestyle, I take vitamin D and high dose probiotics, get out walking when I can, I’ve joined a choir, do Pilates (when I’m not crashing and burning)……. But it’s all rather like walking through treacle.
So, I’m hoping that somewhere on this forum, there may be another ‘odd’ person like me, for whom life has NOT returned to normal. And who has some advice…… maybe it’s time to seek a diagnosis of CFS/ME?
Thanks in advance
