You’re very welcome @Bonny16, and please don’t worry about whether you seem to be complaining! Honestly, it’s kind of amazing that we forum members and our loved ones don’t moan constantly, wouldn’t you say?!
Hope you don’t mind but I had a look around the forum for people living with the same gene mutations and you’re right, I couldn’t find anyone with CBL and TET2. Do correct me if I got those wrong, it’s all a bit like Scrabble with these gene mutations!
However I found a new forum member who has the TET2 mutation, should you like to introduce yourself here: MPN/MDS (u) Overlap Syndrome with TET2 ,Jak2 ,DNMT3A, SRSF2 , AsXL1, MPL variants
Here’s another forum member with TET2: Bone marrow biopsy and Pet scan
And one more person with TET2 as well as Chronic myelomonocytic leukaemia ('CMML'): Diagnosed today with CMML - #7 by CathyP
Don’t know if your doctors have mentioned this but my haematologist told me that our spleens can start to produce blood cells with myeloid blood cancers like Chronic myelomonocytic leukaemia ('CMML') and Polycythaemia vera ('PV'). That increases their size and makes them feel uncomfortable. My spleen ached pretty badly after I started treatment, but faded away with time. I hope your pain stops soon @Bonny16.