Thanks Alice!! I will delete it. Have a great day
@Silke
Hi silke your support is appreciated. I think you deleting your comment is very sensible. We unfortunately live in very difficult times in the UK. I have been fighting a battle since October 2021. I know my future is very bleak with high risk of cell mutations. So I endeavour to highlight my own journey in the hope of finding other sufferers who have had a similar experience.
To be fair to blood cancer UK I think my comments put them in a difficult position. They have supported me for a year since my diagnosis and are doing their best to fight this dreadful disease.
On a different subject I think you would find a article in the Australian Journal of General Practitioners very interesting. As many say these days do your own research.
Best wishes
Unclejack.
Hey there @Unclejack, it would seem that you’re still commenting and sharing misinformation even though, like you say, you’ve “received warnings” about breaches of terms and conditions.
If you don’t mind, I’d rather not keep going over the same ways you can seek accurate information about our blood cancers. This is, after all, a forum about blood cancers for those of us experiencing them and not a COVID-19 forum. I hope doing your own research helps you find the answers you’re looking for.
As a slight and final aside, I note that you’ve made some comments that come across as racist, for example that “all the doctors have English has a second language which doesn’t help communication” and not thinking the NHS is “even the envy of the third world.”
You may not realise it when you post on here with abandon but you’re sharing with people who come from all walks of life, from around the world, and of all kinds of ethnicities and cultures. Life is too short for me to keep tolerating other people’s bigotry so I wish you well and encourage you to look beyond your own experiences.
@ silke
Hi Silke
Just read article from Prescription Medicines code Of Practice Authority… Very interesting. I am still trying to either prove my suspicion of what led to my Chronic myelomonocytic leukaemia (CMML) or alternatively prove I am totally wrong. I have read that benzine and radiation exposure could be a contributing cause of Chronic myelomonocytic leukaemia (CMML) but for myself I have not been exposed to either substance, it would be interesting to know if sufferers had had any exposure to these substances. I have read a year ago that Chronic myelomonocytic leukaemia (CMML) affected about 3 in a million of UK population. I believe that figure has been revised upwards recently. PS the article from the code of practice authority was very recently printed in the Telegraph a quality UK newspaper.
Best wishes
Unclejack.
Dear Jack
This has been confirmed by several German studies (exposure to benzine & radiation).
My dad was never exposed. But in our case … we were affected a lot after Chernobyl (Eastern part of Austria, I was a baby and not allowed to be outside for weeks) - would be interesting if this had an affect on my dad? But then you’d assume that more people are affected especially in these parts of the world, but I think that is not the case …
Unfortunately we will never know all the causes.
Hope you also have sunny weather today and can enjoy a bit
@Silke
Hi silke
A friend of mine worked in a British nuclear power station.Before the accident was announced the fallout reached the alarm system
so they evacuated believing it was a fault within the station! Not long after the Russians announced that dreadful accident.
Best wishes
Unclejack.
I wholeheartedly trust Doctor Angus Dalgleish as he is more independent from Pharmaceutical companies than most Medical Institutions and Government bodies globally including charities such as The Blood Cancer UK.He is willing to sacrifice his professional career by debating issues such as vaccine boosters in the open. People calling him a snake and other name smearing usually means that they do not have a valid response and adopt this juvenile tactic as a last resort.Politicians are also renowned for such tactics.If you work hand in hand with pharmaceutical companies and receive heavy donation funding then I feel that one should be very cautious and critical of those not engaging in proper debate with Dr Angus Dalgleish.
@Miles1
Quite correct. I myself have had comments deleted and have been subject of abuse. Professor Dalglish is 72 years of age and has a mind boggling list of qualifications. His work during the aids crisis was remarkable. His work in the cancer field is brilliant. He has highlighted the global rise in many cancers and leukaemias are rising globally. Unfortunately lies and censorship are the way to cancel any alternative view.
Best wishes
Unclejack.
True, of course we must respect the fact that Blood Cancer UK is regulated by a an authority for sponsorship funding set out on its website.
I just want open debate to prevail.
Best wishes
Miles
Welcome to the forum @Miles1, we hope you find it a welcoming and supportive space to share how you’re doing.
@Miles1 @Unclejack You’re welcome to read our webpage on Working with the pharmaceutical sector. One of our guiding principles in this is that all partnerships, above all, must bring benefit to people with blood cancer. We will not allow the acceptance of funding or support from pharmaceutical companies to compromise our editorial independence or influence our decisions.
We’re aware of concerns felt by some people around the covid boosters and have recently updated our webpage here to address these:
We are aware of various unproven claims that are circulating about links between covid vaccines and cancer. Claims that covid vaccines can cause cancer or make cancer come back are not supported by the latest and most robust scientific evidence. Often, these claims will be based on a single case, or a very small number of cases.
These claims are dangerous if they lead to people making health decisions based on information that they believe is well-evidenced when the evidence is actually weak or sometimes non-existent.
The most reliable forms of evidence are things like meta-analysis, systematic reviews, national guidelines and large randomized controlled trials. They include large sets of data, and analyse results across multiple other pieces of research. The lowest quality evidence sources include personal experiences of individual patients and non-analytic studies like case series or individual case studies. They involve tiny numbers of people.
Getting vaccinated against covid is a personal decision, but everyone should have access to the best available evidence when making that decision. On this page, we tell you what the latest and best quality evidence says, including both the benefits and the side effects of covid vaccines.
We’re only a phone call or an email away on 0808 2080 888 or support@bloodcancer.org.uk if there’s anything you’d like to talk through with us.
Best wishes,
Blood Cancer UK Support Services
@Alice_BloodCancerUK
Hi Alice I think I owe you an explanation of why I have an opinion of doubt about the safe and effective vaccine. I return to myself and my wife’s experience after our third shot of vaccine in October 2021. Within 48 hours of our vaccination my wife had a blood pressure reading over 190/95. This is dangerous and could have caused a stroke NHS 111 advised immediate medical attention. My wife was given a second blood pressure medication to bring it down to an acceptable level. A short time after I developed small specks of blood on my lower legs and was referred to dermatology. I was misdiagnosed as having skin cancer and was prescribed chemotherapy cream fortunately I requested a biopsy which revealed it was not skin cancer but capillaries leaking blood. I asked a GP at the practice if there could be a link with the vaccine and he said it was possible as I wasn’t the first to have this experience. This was July 2022. Then in October 2022 I had a urgent call from another GP who immediately referred me to haematology after seeing many abnormal levels in my blood test. After another few months a bone marrow biopsy was carried out
and Chronic myelomonocytic leukaemia (CMML) diagnosed. I had posed the question of Leukemia to my haematologist and he said he did not think it was Leukemia. But unfortunately for me the bone marrow test proved otherwise. I am certainly not antivax and have had all the antigen vaccines. I have not and will not take another mRNA vaccine. Many friends of mine have taken all the booster shots
and many have developed a COVID infection within days of their booster. I am vulnerable as I have neutropenia and thrombocytopenia and yet I have carried out shopping for elderly friends and neighbours who have been to ill to go out and have been fighting another COVID infection.
I am not a person who follows conspiracy theories neither am I a fool. Perhaps it is all a coincidence for both myself and my wife but I have not been convinced that this is the case.
Even Dr. Robert Malone who was instrumental in the development of mRNA technology has cast grave doubts over its safety and has been censored for his views.
Best wishes
Unclejack.
Thanks for your comment @UncleJack. Everyone is absolutely entitled to their opinion, and has their own reasons for choosing to have or not have the vaccines offered. We just want to make sure people are guided by their haematologists/healthcare teams, who know their medical history, and not guided by other people’s opinions. You may have already done this but do feel free to report what you and your wife experienced, to the Official MHRA side effect and adverse incident reporting site for coronavirus treatments and vaccines | Coronavirus (COVID-19).
Best wishes,
Alice
It is good to debate the issues raised by Prof Dalgleish. I get what is being said by the Gov etc about the 2024 vaccine update/ booster being safe . And I believe it is safe . I’ve had six over the years and not anti it at all, but am still not sure about whether there is much point to getting it…how much actual extra protection it gives you. I read somewhere if you ve had the original vaccine and a couple of boosters and indeed a dose of Covid then your immune system has a memory, it’s imprinted. It’s all very complicated but fascinating. I moved my booster to June so I can think a bit longer.
Hi Sky sue.
I think many people are asking questions about the mRNA genetic medication which are certainly pushing the old school antigen vaccine
into history. For myself I had the first three then I developed thrombocytopenia. After that , many blood tests identified a roller coaster blood count journey and then Neutropenia started.
Only time will tell if Professor Dalglish assessment proves to be accurate. I firmly believe he is correct and have not taken a mRNA medication since. I have been told that next season’s flu shot will be using mRNA technology so I won’t be taking that either. So far other than my Chronic myelomonocytic leukaemia (CMML) I have had no other illness yet. But my doctor has left me in no doubt that I am at high risk of mutations and this will be terminal. These new genetic medications are a personal decision for each of us to make. I made my decision on my own experience and studying many peer reviewed papers. The thing I really regret is persuading my wife to take the shots in 2021 which resulted in her blood pressure sky rocketing after the third Pfizer shot. She takes two meds. to control it now.
Wishing you all the very best
Unclejack.
Thank you Unclejack. I was sad to read your story and about your wife . You do what you think is right at the time. And time will tell I guess what the rights and wrongs are and meanwhile we must make our own decisions. I came across a transcript of a recent debate in UK Parliament . It mentions mRNA. I can’t post the link but it’s in Hansard.parliament ….uk well worth a read and I thought it might be of interest to you- it was 18thApril 2024. Meanwhile I’m still mulling it all over.
Hi @Skyesue Sky sue
I have seen the debate last week very interesting. Seems concerns are growing. I actually e.mailed my local M.P. last year just before my diagnosis all I received back was an automated reply promising to contact me within 10 days. Unfortunately she hadn’t the decency to reply. It all reinforced my suspicions. Wouldn’t it be nice if politicians listened to and represented their constituents? Unfortunately that hope is dissolved in the corrupt society we live in. Seems big corporate pharmaceutical companies have total control over our GPs who are terrified they will lose their jobs if they cast doubts on the narrative. Seems we have to do our own research and try and find evidence to reach a decision. I will stick to good old fashioned antigen vaccines for the time being but I think the 100 billion profit made by Pfizer and another huge amount by Moderna will soon end the production of antigen vaccines. A great shame, I have had all my shots since the early 1950s and never once had a reaction. I must admit the BCG vaccine for tuberculosis was somewhat a messy procedure. But nevertheless it was very necessary.
Best wishes
Unclejack.
@Skyesue @Silke
Have just watched a emminent Australian scientist who was closely involved in the Genome project explaining what we have spoken about recently and our fears. It was uploaded to Dr. John Campbell u tube channel in two segments.Segment 1 titled DNA uploaded 3 days ago. Segment 2 titled INDEMNITY QUESTIONED Uploaded 7 days ago. Very interesting.
Best wishes
Uncle Jack.
Thanks a lot Jack! Hope you are doing well, have a nice evening!
Thank you Jack. I will definitely find this and watch . I saw an article from Florida expressing concerns- I’ve lost the link but it’s looking like there’s concerns in quite different parts of the world about this. Appreciate updates. Sue