Oh @SophieMae a great big welcome to our forum family.
I am not surprised that you are terrified for so many reasons.
The biggest being, I believe, is that you are a mum and all that special bond that brings.
Also all that scary language that I have never learnt.
The unknown and powerlessness are really horrible too.
If you put Acute myeloid leukaemia (AML) in the search bar at the top of the page you can search Acute myeloid leukaemia (AML) threads. I attach just one, rather a long one actually.
Acute myeloid leukaemia - Caring for & supporting a loved one - Blood Cancer UK Online Community Forum
The Blood Cancer UK support line is also there for you on 0808 2080 888.
Perhaps just try to take it a day at a time, I know it is not easy, but it is certainly all I can cope with.
Treatment might mean that your daughter feels better one day and not so good the next, and all you can be is beside her so she can be honest with you how she is really thinking and feeling, I reckon it is your greatest gift.
Perhaps you will need support for you to say how it really is for you and I have found this is the place for me.
If you have family and friends that you can talk to them, all the better.
The hospital might have a group, a Macmillan or Maggies Centre (or equiv), via your GP etc.
The hardest one for me is asking for and accepting help.
Please try and look after yourself as well as you obviously look after your daughter.
Please keep posting I look forward to hearing more about you.
Be ever so kind and really look after yourself
5 Likes