Diagnosed with Hairy Cell Leukaemia

Recent diagnosis
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I’ve just been diagnosed with Hairy Cell Leukaemia, but have no symptoms as yet. It was found after total blood counts showed low neutrophils and monocytes and a bone marrow biopsy confirmed it.

I was very surprised because I feel very healthy and considered that my nutrition was excellent, including several types of fermented foods - hence my username. I am hoping that progression will be very slow, helped by my good microbiome, and will be very annoyed if (probably when!) I have to take antibiotics which will disrupt this.

I understand that this condition is one of the rarest blood cancers. I have found a few posts about it on this forum, but none very recent. If there are still members on the forum with Hairy cell leukaemia (HCL) it would be good to hear from you.

Thanks

Andria

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HI @Fermented ,

Thank you for your post and welcome to our forum.

I am sorry to read of your diagnosis of Hairy Cell leukaemia. It is good to hear that you have no symptoms and are looking after yourself. This is so important.

I have enclosed our information on hairy cell leukaemia which includes a section on living well that you might find helpful to read Hairy Cell Leukaemia

We hope others can share their experience with you but if you ever feel like you need support or would like to talk things through, please do not hesitate to contact our experienced haematology support nurses on 0808 2080 888.

Take care

Fiona (support services nurse)

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