Erdheim-chester disease

Recent diagnosis
21

Best wishes for today @Gary

1 Like
22

Thanks Abbey, Erica. PET Scan results are stable. No new cancer. They’re reducing my medication to hopefully stop the temperature spikes

1 Like
23

Hi @Gary in my book stable is positive. Let us know how your temperature spikes go.
Look after yourself and please do keep posting

1 Like
24

Just catching up on this post. That’s good news that things are stable :blush:

2 Likes
25

Hi @Abs555. Great that you have been able to share things with @Gary. Really shows the value of the forum. Hope you are doing ok? :blush:

1 Like