ET and Pernicious Anaemia

I am so glad @Jimbo165 that you got your call back and schedule, I always like to have a plan.
Watch out for that porcupine.
Yep, be very kind to yourself and please keep posting.

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Now that’s an achievement! So glad you are ready to go on Monday!!!

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Good evening all, hope everyone is well and have you have been able to enjoy today’s remarkably hot autumnal weather.

Just to let you all know that I have survived my first B12 jab this afternoon/evening and, other than it stinging a fair bit as the plunger was depressed, it wasn’t too bad. only 5 more to go over the next 11 days.

Take care all, stay safe, and remember your sunblock this week! :sun_with_face: :sun_with_face: :sun_with_face:

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Well done @Jimbo165!

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All going ok @Jimbo165?

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Good evening @Nichola75, I’m okay-ish thank you, although I haven’t noticed any improvements in my energy levels as of yet, but that may be due to the heat coupled with my general health levels.
And my age too!
It will also be 6 years on Monday, to the day and date, since my first moment of medical madness when I had my one and only, so far, heart attack.

Take care everyone, especially in this heat, stay safe, and remember to be kind to yourselves.

Best wishes
Jimbo165

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Hi Jimbo - I’ve only just joined the forum & read about your problems. I’m a retired practice nurse & it was part of my job to administer B12 injections so they are done at the surgery & I’m very sorry that you slipped through the net for them to start this action.
The regime is intense & then one injection every 12 weeks. You won’t feel an immediate benefit but it will come & you should get less fatigue & also tingling in your hands & feet,
I hope the injection isn’t too uncomfortable for you & you soon feel the benefits from it.
Regards from newly diagnosed essential Thrombocythaemia sufferer- ( nurses make the worst patients :roll_eyes:):hibiscus::hibiscus::hibiscus::hibiscus:

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Good evening @KathyJ, and thank you for your kind response and welcome to the mad world of bad bloods.

Well I am 4 jabs in now, with 2 more to go this week, then a pause for 12 weeks until the next one. But fear not, I won’t be suffering from needle withdrawal (pun intended!) as I have my Pegasys injection next Saturday (these are every 3 weeks!), my flu jab the Saturday after, and have today booked my Covid jab for the 21st of October. I fear that I am taking on the appearance of an over used pin-cushion now! :stuck_out_tongue_winking_eye:

I really do hope that my fatigue levels improve soon as they are really debilitating these days.

Take care, stay safe and be kind to yourself.

Jimbo165

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I hope your fatigue levels improve too. It is so very debilitating. Thank goodness for a positive attitude & sense of humour :blush:
Best wishes :smile:

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Good evening @KathyJ, and thank you for your kind words.

You may have detected from my posts that I have an over-active sense of humour, mostly of the self-deprecating variety!
The time for my family and friends to worry about me is when I stop taking the ā€œproverbialā€ out of myself.

Take care, stay safe and remember to be kind to yourself.

Jimbo165

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:rofl::rofl::rofl::rofl::rofl: Wonderful!
You take care too.
I’m sitting looking out over a beautiful bay in Menorca getting bitten by mozzies & thinking they would leave me alone if they knew how rubbish my blood is :woman_shrugging:

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Ooooh, enjoy the beautiful bay in Menorca, and just think of the revenge you are getting in on those poor unsuspecting mozzies! :joy: :joy: :joy:

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Oh, I love it @KathyJ Menorca and the the revenge on the mozzies sounds a good title for a film to me.
@Jimbo165 I share your sense of humour too.
Enjoy yourselves

That sounds like an excellent film title !
Please excuse my scrappy replies. I’m still navigating the forum & my technical skills are dubious :roll_eyes:
Have a wonderful day & I’ll continue being eaten alive :laughing::mosquito::mosquito::mosquito::mosquito::mosquito::mosquito:

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Good morning all, I hope that everyone is well.

Just an update for you: I’ve now had all 6 B12 jabs, and every one of them stung like a stingy thing with a bad attitude at the time of the injection, although that sensation passes within a couple of minutes.

So far I am yet to notice any improvement in my energy or fatigue levels and ā€œfearā€ that I may be one of those awkward customers for whom the Injections ā€œdon’t workā€!

I will now be on one of these every 12 weeks or so, along with my Pegasys injections every 3 weeks.

I am also now booked in for my Flu Jab on the last day of this month with my Covid Booster 3 weeks later.

Take care everyone, stay safe, keep smiling and remember to be kind to yourselves.

Jimbo165

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Hi @Jimbo165 glad to hear that your batch of extremely stingy B12 jabs is over and let’s hope that you are ā€˜not one of those awkward customers’ and you feel an improvement soon.
Yep, I have booked my flu and Covid vaccines at the end of the month too.
I am keeping smiling, especially when I read your turn of phases.
Be kind to yourself

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Good evening @Erica, and thank you for your kind words.
Going on my previous ā€œformā€, I will be the one that B12 doesn’t work for, but I also live in hope that it may do so, and soon!

I still feel like an overused pin cushion and don’t think it would be wise for me to go swimming just yet, in case I fill up with water and sink, uncontrollably, to the bottom. That sort of thing is frowned upon by the pool staff, and I speak as a former Swimming Pool Lifeguard, admittedly several decades ago now! For any readers that know of the place, I was a part-time (2nd job!) Lifeguard at Stetchford Swimming Baths, in Birmingham, when it reopened as Stecthford Cascades in 1991.

I shall try to comply with your most sensible suggestion to be kind to myself, but I can make no promises!

Take care and stay safe.

Jimbo165

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