I was diagnosed with Essential thrombocythemia ('ET') around 4 years ago following surgery.
Recently I have been suffering with more and more fatigue. I take regular exercise, a good(ish) diet, sleep is OK.
Has anyone got any tips for helping with this?
Hi @Knorth26 Welcome to the forum.
It sounds like you are having a challenging time right now.
Have you asked to speak to or have an appointment with a Haematology Consultant?
If not, probably worth doing as it sounds like there’s been a change in your fatigue.
Duncan, Thank you for the response. I have spoken to my consultant, last month, but nothing since. I am going to create a diary and see if I can pinpoint the triggers.
Hi @Knorth26 and welcome to the forum,
I have a different blood cancer but I am aware that this is a topic that comes up a lot on the forum and there will be lots of members who will be able to share there experiences with you.
I have copied a couple of links below on previous chats. Members discuss what works for them and there are some useful links.
I hope you find value in the forum and that you are able to find some things that help with your fatigue. I know how hard it can be.
Take care and keep us updated on how you are doing 
Thanks. I have built myself an app to track fatigue, food diary, exercise etc so hopefully will be able to pinpoint the triggers.
Hello @Knorth26
Welcome to the forum and thank you for taking time to post
I’m sorry to learn of your circumstance
Like @Nichola75 I too have a different blood cancer but I agree that this is a question often asked. Lots of members will be able to share there experiences with you, and I am one of them
I take a ‘power nap’ most days - often in the afternoon - and it is usually no more than 30 minutes or so. I must need it as it does not impact my night sleep, so I just go with it and don’t worry myself. Like you I take good exercise and maintain a good diet, so the fatigue just comes with the condition I guess.
Our bodies are complicated things in my opinion, and if they need to rest so be it.
As @DuncanB has mentioned it is always advisable to speak with your medical experts if you feel the need to and follow their advice and guidance.
On a personal note, I am considering some complimentary therapies, but again I am in touch with my key worker and / or GP for advice all the way.
Take good care of yourself
Kind regards
Mike
Hello there @Knorth26, welcome to the forum, fellow survivor of Myeloproliferative neoplasms ('MPN'). Sounds like you’ve been doing well since diagnosis, keeping active, eating well and sleeping okay. After my own diagnosis with Polycythaemia vera ('PV') my specialists encouraged these too and they keep me healthy.
I see dear @Nichola75 has shared some great threads relating to Essential thrombocythemia ('ET'). Sadly, cancer-related fatigue is such a common symptom and side effect of Myeloproliferative neoplasms ('MPN') like ours and their treatments that it has its own acronym of CRF. After my diagnosis I started taking daily hydroxyurea which caused pretty disabling fatigue, really getting me down. I’d previously been active and healthy so I tried to read up on what might help.
Although I’m not a doctor, an analysis of cancer research I read early on showed that some rather counterintuitive things offset fatigue, namely keeping active. This seemed back to front to me, but anecdotally it does help me. Slow exercise like yoga, tai chi, Pilates and qigong are shown to improve energy levels in people living with cancer.
Personally, I took up yoga again which kept me flexible and helped slow down anxious thinking too with its focus on breathing. My former hiking became urban strolls, until energy levels built back up again. I’ve even been kayaking a few times which gives my legs a break but still gets me out into the wild. So my tip is to keep active in whatever ways you enjoy, and be careful in the sun!
I’d second @GenesisDevice in suggesting naps! I love a catnap when I’ve reached that wall of fatigue you may also know. Even resting without falling asleep can really help get me through to bedtime.
I’d say it’s always wise to pass any change or difference in symptoms by our specialists. From my non-medical understanding, these Myeloproliferative neoplasms ('MPN') can affect how much oxygen is in our blood which can affect energy levels. Fatigue can also be a sign of other illnesses affecting us, so maybe let your specialist know.
As you mentioned you’re going to create a diary, perhaps these apps might be of interest that were recommended by dear Nurse @Heidi_BloodCancerUK. Here’s the MPN Voice app and an MPN tracker.
Do please keep us posted about how you get on @Knorth26!