ET - Feeling tired, isolated, abandoned, invalidated, and like there's no end in sight

General chat
41

Hi @Chapsticks I have been thinking about you and I was wondering how you are doing?
Look after yourself

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42

Aw thank you @Erica, thatā€™s so incredibly thoughtful of you! I havenā€™t been in a great space since the changes, especially knowing more still to come, feeling quite hopeless about the future at times, and very much wishing I had the mental back-up of the antivirals. Buuut reminding myself new drugs will come and eventually Iā€™ll be in a better position to go out, and at least I have everything I have in the meantime. Itā€™s really helped having the understanding on here, I can find it a bit crazy-making having a condition where you know you have vulnerability but thereā€™s no obvious illness people can point to and go, ā€œAha, I understand!ā€ Anyway, battening down the hatches for the next stretch! How are you doing?

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43

Hi @Chapsticks battening down the hatches for the next stretch (literally in my case, see below) sounds good to me.
I overdid it on Thursday emotionally and practically and my fatigue has really set in today, everything feels too much effort.
I am now going to do my exercises for my curvature of the spine and osteoporosis and 10 mins of relaxation and stretch before watching the finale of something sub titled on BBC4 and my 9.30 hot chocolate.
Look after yourself and keep posting

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44

Hi @Erica - oh no Iā€™m so sorry your fatigue has set in, I hope youā€™re feeling a little better today after a bit of relaxation, hot choc & self-care. It can be unbelievably easy to overdo things (in all these ways) and I still find it amazing how much impact it can have, often for days! It sounds like you treated yourself well afterwards though, how are you feeling today?

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45

Hi @Chapsticks yes, thanks for asking I am feeling a bit better today, but as you so rightly say a bout of real fatigue can last for days.
It sounds as if you have got to know yourself well too.
Look after yourself

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46

I think we all get fatigue a lot and you seem to have lots of coping strategies. Like the idea of hot chocolate and a nice serial. Thatā€™s my kind of coping :slight_smile:

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47

Hi @Erica - glad youā€™re feeling a little better than you did :slight_smile: You offer such a lot of support to others and that can be tiring in itself so itā€™s good youā€™re taking care of yourself too!

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