ET JAK2 Positive

Hi

I was diagnosed Essential thrombocythemia ('ET') and I’m Jak2+ back in 2023.

I have been okay past two years but this year I don’t feel the best. My platelets are at 1300. I have been taking 75mg aspirin daily and nothing has made a difference.

Spoke to my haematologist today and he said we will try the interferon injection just wanted to know anyone whose recently started it and the process side effects etc I’m 36 years of age female.

Thank you :green_heart:

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Hello there @Azra1989, welcome to the forum. I’m glad it’s been okay since your Essential thrombocythemia ('ET') diagnosis but am obviously sorry you live with it at all and have been feeling off this year. I was diagnosed with Polycythaemia vera ('PV') and a JAK2 mutation in 2023 so can perhaps understand some of the challenges of these Myeloproliferative neoplasms ('MPN').

I take a different medicine to interferon, hydroxyurea, but I know of a lovely group of folks living with Essential thrombocythemia ('ET') that have shared all sorts of stuff about taking interferon and similar. I’ll add their thread here in case you’d like to see how they’re getting on: ET diagnosis finally sinking in

Perhaps something I can share that might offer some reassurance, as a fellow ‘young’ survivor, is that my haematologist reminds me that we are likely to live into normal old age and pass away with these Myeloproliferative neoplasms ('MPN') rather than due to them. That keeps me motivated to stick to my treatments, and also know that there are decades ahead in which cures or remission may be found for people living with Myeloproliferative neoplasms ('MPN') like ours.

Do have a look around the forum @Azra1989, you will find many others who have shared about taking interferon. I hope others can offer tips here too.

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Hey Duncan,

Much appreciated with the kind and supportive words means a lot. I’m not one to air what’s going on my daily life but I guess we’re all in the same boat of some sort on this forum it doesn’t feel as lonely sharing experiences.

I will have a look around the forum I wish you all the best :slight_smile:

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You’re very welcome @Azra1989, this forum is great for finding supportive people. I know what you mean about not being one to air one’s life—in real life I’m a total introvert but here it somehow feels safer to share, despite being public. You’re not alone with Essential thrombocythemia ('ET'). Remember to only share what you want.

Really glad you found us, do please let us know how you get on. Here’s another thread with discussion of both Essential thrombocythemia ('ET') and interferon: Experiences with Pegasys for ET

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