Hello @anitajayne
Thank you so much for posting and it is understandable you have the questions around Cladribine. We are glad you have come to the forum as it is such a supportive and welcoming space where I am sure you will gain other’s experience.
Here is some information on Cladribine from our colleagues at Cancer Research UK: Cladribine | General cancer information | Cancer Research UK
The process of managing neutropenic sepsis is reactive as there is no definitive frequency for individuals but you will be given clear escalation on how to manage this if it happens to you from your treatment team. If you are neutropenic you will be advised to take your temperature at home if you feel unwell or feverish, if you do have a temperature over 37.5 degrees you will be guided to call your treatment team who will then arrange for you to be reviewed and treated. The antibiotics they give will be broad spectrum to cover the most common infections, in the meantime, the team will have taken blood cultures or swabbed any potential infection areas (for example the throat, wound, central venous line site) and adjust antibiotics if needed when these results are reported.
We have some information on neutropenic sepsis here that may be useful but I would be reassured that your treatment team will give you definitive and local advice for you: Neutropenic sepsis | Blood Cancer UK
We are currently working on some new information about hairy cell leukaemia. If you are affected by hairy cell leukaemia, please get in touch with Abi on ahowse@bloodcancer.org.uk if you’d like to help shape the new information.
In the meantime, all our general information will be helpful if you have hairy cell leukaemia. We have information about what happens after diagnosis, covid and blood cancer, side effects, living well with blood cancer, watch and wait, and support for family and friends.
Our Support Service is also here for you - we can help you find out more information about hairy cell leukaemia, so do please call us if you need.
Kind regards
Gemma