Oh Alan, I am not surprised you are feeling beside yourself with worry, shock and waiting are horrible places to be and everything seems to move so slowly.
I was diagnosed with a Leukaemia in 2003 and those feelings are so similar to mine at the time. I felt I would be diagnosed and immediately be offered a treatment regime. However I was put on what is called ‘watch and wait’ or ‘active monitoring’ and ever since I have had regular blood tests which sometimes fluctuate. I feel a very lucky girl. It does mean I have learnt to live with the symptoms I was diagnosed with. My diagnosis has given me the opportunity to look at myself and really get to know how I tick and that helps me manage my symptoms. This is just my experience. Take care and please let us know how you get on so we can support you.